Transcripts For ALJAZ The Stream 20240712

Wanting to call people to account for the mess that these elections were. All these allegations these violations seemingly. Proving true according to the Central Election Commission so as we go forward although were a long way off obviously seeing a new election date i think before that election the process of trying to call people to account for those violations in the campaign and on election day is going to get started immediately. West African Leaders have lifted sanctions on mali after the military coup in or ghosts when a new civilian Prime Minister was appointed thats what theyve done today last week the ecowas bloc imposed the sanctions after president abraham. Was ousted by military leaders turkeys foreign minister is condemning International Efforts to end the conflict between azerbaijan and armenia. Offered his full support to azerbaijan during a visit to the capital armenia as Prime Minister was a. Juror in the bombardment. Iran has registered more than 4000 new coronavirus cases in the past 24 hours Record Number of infections takes the total number of cases to just under half a 1000000 more than 27000 people have been killed the Health Ministry says the entire country is now on a red alert after just 3 nights in hospital donald trump returned to the white house and despite being hospitalized for cope with 19 hes called on americans not to worry about the virus but his recovery isnt over his doctors say he is not out of the woods yet. Another news for you from 15 g. Up next is the stream i will see you very soon for the moment by. Frank assessments if American Public opinion is betrayed by social media platforms after november would be because if you believe that there are corrosive to our democracy one obvious solution is to break the most informed opinion. Anyway the protesters going anywhere either. Indepth analysis of the days global headlines who is it thats really out there on the street inside story on aljazeera. Ok today we return to a subject that was touched on several times on the stream and thats minorities in the u. S. Being involved in that scene trials and earlier we spoke to public historian. Who told us why its so critical minorities take part in these. We advocate for diversity and inclusion and incredible trials including challenge trials other social determinants of health and fire mental conditions housing food availability that disproportionately impact nonwhite people and can impact reactions to vaccines and other medications so any Clinical Trial must incorporate a diverse range of participants nonwhite people as well as to go from a range of geographic and other kinds of backgrounds our work or Advocacy Works also involves starting a conversation around racism Equity Inclusion in medical Ethics Health and Public Health and vaccination far more broadly than 1000 back scene is on the beginning of a longer project of antiracist work in medicine so this potentially could be uncomfortable conversation about race medicine. Vaccine trials and the ready for a jump into the comments. To be part of today. Hi larry linda hello granted we could miss you going to be town team integrate this today they have so much knowledge youre about to see blood junior linda reintroduce your south stream audience. Hello femi thank you for having me im going to go about president and c. E. O. Of the black Womens Health imperative the only National Organization focused on black Womens Health Emotional Physical Health and Mental Health so happy to be here welcome back hello there glenn tell everybody who you are like ike their meal melinda good to see you both i am arkell and alice im based in philadelphia im a currently a visiting scholar at the National Bioethics center and at Tuskegee University and im also a fellow at Harvard Medical School and both Research Bioethics and and on narrative ethics i am going to jump straight into the you cheap comments when i would its knew we were doing this show this this comment here are you kidding are you not aware of the deep mistrust afro americans have about the medical system review your history of medical apartheid and genocide in the u. S. We aint having none of it its. Impact that you know. Yeah there is a lot to unpack there and this is you know as the writer said this is deeply rooted in history this is deeply rooted in 400 years of oppression in this country and then of course colonialism outside of this country going even further back i mean the fact is you know the reason we have trials distance to ensure that vaccines are therapeutics are safe and effective but they need to be safe and effective for everybody and if we dont include everybody then theyre less reliable and so in this country where weve got a history that that i know glenn was going to speak to so well of medical abuse of her griffith abuses you go back to james marion sems and the way he brutalized slave women and and you know obviously Henrietta Lacks and having naming herself after her without her permission but come you can come to today i happened to be in georgia and just a month ago we saw where institutionalized let pinas were being sterilized without their permission so this mistrust this reluctance to participate in what comes across as a experimentation is well founded historically but its well founded in whats happening today. Glenn im just going to jump back in to you tube again literally or green warner the tonya thank you for joining us she says look the Tuskegee Syphilis experiment. Anyway linda just ruled off a number of i would just see an ethical experiments own black people in United States take one of them take the tuskegee experiment because within the us people know that outside of the u. S. If they dont theyre going to be shocked when you tell them what happened briefly thank you thank you for to me you know this is a classic example of what it means when it says. Until the lion gets its own story tell us the story of the hunt is going to always glorify the hunter and the 1st thing we have to eg knowledge there was no Tuskegee Syphilis study there was a u. S. Publics Health Service study on syphilis at tuskegee it was only the exclusion of the fact that this was the United States government conducting this study of watching the progression of the disease of syphilis in an educated poor black farmers and we have now allowed the narrative to be about. First of all ups syphilis study Tuskegee Syphilis study as though the university was actually the one that did it but more importantly we talk about this mistrust and we dont even acknowledge that myth its almost as though they think mistrust is something that were born with that theres some kind of genetic defect that blacks have mistrust against health care and stead of egg knowledge ing and being accountable for the incredible racist history that linda has just articulated that has led to anybody with commonsense mistrusting somebody who has demonstrated as linda said for over 400 years that we dont matter theres no example in this entire societies history where you can point to something that shows that africanamericans and blacks are actually a part of the overall d objectives and goals and aspirations of this country it doesnt exist so mr mistrusts is totally the wrong term to use its like common sense and what people understand they need to do is to only way weve survived for the last 400 years losing the reason mines is going to pieces and Uncomfortable Conversations because. It liddy seen you expect your medical professionals to take care of you weak gondolas of what really looked like where you live what your resources are why does this not happen in the ninetys states yes it is uncomfortable but it it reveals the the fundamental systemic racism that exists in our Health Care System let me that the number one reason and we is going talk about theres incredible historical mistrust and warranted but the number one reason black people dont participate in Clinical Trials is because they are not asked their physicians make all kinds of assumptions about what they will and will not do whether or not theyre welcome playa whether or not they will will be able to travel and that they have enough money and so because of these races perceptions they simply dont ask their patients to participate and so we leave out an entire group of people who can benefit and just in case people think it doesnt matter it does when you look at for example the h. P. V. Vaccine which has been demonstrated to prevent Cervical Cancer in women the 2 strains that are most responsible for Cervical Cancer in black women are not included in the back scene where there were no black girls in those trials and so this absolutely does matter and you know you come forward to carbon 18 theres a therapeutic dexamethasone which has shown to be effective in people with severe disease well doesnt work as well and africanamericans no no surprise not included in the trials so these met these things matter and if if our physicians would ask just say look you know miss smith i think this trial would be really good for you were going to work with you to make sure that you have the best possible experience in this trial it could make a huge difference but its just nash apne. I mean why is it not happening i think if you let every now do this if we know about the inequities in the house system you ask why it took does not do yes because racism and structural and institutional racism is really designed to protect the power and privilege that white people enjoy so its in their benefit is to their advantage and to their benefit to do everything not to dismantle it because human nature says none of us like to lose power and privilege thats just a human nature thing so the structural is Structural Racism in our medical system i want to Say Something 2 things real quickly one i just got over my 1st ever sinus infection and i feel like i should apologize to everybody i ever blew off to complain about a sinus infection that is a horrible its a horrible experience but anyway the point is i went to an air nose and throat specialist on a referral from my doctor my primary doc i get to the office wait around wait around often as you normally do they called me into the waiting room i go in sit on the exam table look up on the wall there are 48 by 10 photographs of all white men doctors so when the doctor who was seeing me came in the room and said us and enter deuce themself and thats what i was there for us if wait a minute if you tell me what thats all about its all those are some very great doctors and they were very good mentors to the person who found it a so what doctor let me ask you a question how confortable with you be if you wear our roles were reversed right now you came in here and there were 40 pitches a black man up on the wall and the exam room he couldnt answer that. And the other point is just that how deeply steeped racism and how black just being black has made medical lies to be a condition of disease that goes back to 70 all the way to the origins of this country then im so glad you mentioned that because we switched to cali we we spoke to clean i was going to get a pickup of the back of a clean about theres something wrong with black bodies is this something wrong. That i think used to be experimented on or avoid it to be putting vaccine trials this is how killeen put it lets have a listen to. By frame in black americans as biologically at risk for this disease for coke at 19 were not only communicate the message that black bodies are inherently defective and prone to the disease we obscure the underlying structural causes for Racial Disparities in health and these are the social determinants of Health Including and especially medical racism biological race cannot be the basis for equipment recruiters must reject this harmful logic because it ultimately subjects africanamericans a disparate treatment in research sevens and they must also abstain from stigmatize and africanamericans as irrational in their skepticism and they must contend with the fact that those or usually are recruited 1st are often denied access to the therapies built upon their bodies. Glenn i thought there had been cleaning but i know linda in particular you are set up with black women being targeted is this something wrong with black when i need to learn pushback all the time absolutely and black women dont view themselves as we say broke or broke down i mean we have conducted a study years ago where we asked black women to define health and that is not our view we know we are fine we know theres nothing wrong with us but there are the systemic barriers and go and i just want to touch on something you said you talked about going to the Doctors Office and you know youre waiting around well for me to to give you a sense of how ingrained how entrenched systemic racism is it isnt literally built into technology but the appointment scheduling systems the Artificial Intelligence systems have racism built into them i brought up a coauthored a paper with some colleagues last year that show that racism is literally built into this intelligence into the algorithms of scheduling systems such that black people wait 23 times as long as white people to get an appointment so if youre on a schedule you go see your doctor youve got a 3 oclock appointment and its suddenly 5 oclock of course youre going to lead and perhaps you wont come back so this has real implications for our ability to access care and access quality care when racism is literally built into the technology into the machine language. That that control scheduling and Clinton Glenn you have just laid this out kathy youve given Historical Context youve put it up to date let me just show you here. Some of the child pages from sizes im going out to families and they are looking at the trial locations the trial progresses is the cause of 19 vaccines participant diversity lets just look here that to be pretty transparent in the u. S. 5 percent asian 9 percent black. Hispanic allotting x. 12 percent 90 can i can point 7 percent this way its not about 25 percent of that comment that seeing trials the coverage 19 is looking at minorities glenn is that and not well 1st of all why wont we trust those numbers why why is it that if we have watched systemic exclusion of black people in Clinical Trials and i served on 5 different our beings over the course of 15 years so theres nothing about Clinical Research i dont understand and know and i know theres no accountability we already know systemically there is no universal system to collect racial data so why should the 1st thing is why should we trust what they say why. Not why should you not trust this 2020 we have Massive Movement everything is turned upside down for 2020 we have 4 lines that were releasing right now as apply as this is really why you still do a cynical as a people and you cheaper. And let me just say this at the beginning of this pandemic. The guidelines of this your formal recommendations were that if you have if you think you have this virus do not go to your doctor call your doctor so they can arrange for you to be tested the data shows that a significant portion of black people dont have a primary doctor so who are they going to call so it just is another example of how deeply embedded systemic racism is so much so that we have black doctors cold at 19 consortium in philadelphia which is a group of black doctors led by dr Alice Sandler who have their full time doctors shes a pediatrics beach pediatric surgeon and down she has the moonlight on Saturdays Sundays at night with the other group of our colleagues to test black people in parking lots at churches because now how could we have the entire Health Care System a Public Health system and in a crisis like on pandemic theres no inclusion of black people just to be tested so why should we trust what pfizer says about how many. Family i have to agree in the early madonna trials and madonna has in at in ajman mean to so this is government funding and the government requires 9 percent at least 9 percent black anticipation in the early modern trials there were 2 black people the great white house of how many im actually looking at their breakdown here with you know you can see that not an accident if that really doesnt exist do you see this when you see these tiny little colors here these are people you see people of color green is asian. Oh my goodness. Until he read that i mean its not exactly who he is blackall African American so hes like didnt the family you know his numbers down here these are people of cholera so you would think by publicizing this this is like were being. Transparent were printing people who are friendly know what hes into you know im jon snow and im going im going to promise a Little Company theres really no accountability youre not getting government funding so whos looking at you to seem to make sure that you have appropriate representation in your trials i mean after all only 4 percent of black people participate in trials anyway but given the disproportionate impact of kobe 1000 on the black and brown population tony found he himself said the people of color are to be 66 percent of all trial participants and were nowhere near nowhere near that absolutely because i just quickly say this what we have to also not ignore in this conversation 2 things one its only a difficult conversation to the people who havent experienced what weve experienced before 100 years im not in the business of trying to make people feel good about facing this con this subject because ive had to watch my aunts what happened with my ancestors but more importantly why are we talking about a concept like race that is totally social based. In the context of science right so youve got to look at how weve got a call as a society we infused a social concept and made it a fundamental fact factor in clinical in science that defines. This is how can you help describe exactly what youre saying when considering race in Data Analysis race is not a risk factor racism is the risk factor that i keep trying to pull you 2 into now what are we going to do when you keep putting me back into its terrible so here is what im thinking. Linda you call yourself im just looking here on on on your on your social hear a carrillo Health Advocate give us some Gorilla Health strategies because if people of color if minorities are being impacted by covert 19 more than any of their. Different groups the mute we need some guerilla tactics right now the vaccine trials will be less and so one of the things that they were doing at the black Womens Health imperative is we have a partnership with stand up to canter and friends of Cancer Research actually train black women and Clinical Research clinical protocol protocols how to participate what to expect how to make sure that you get the best possible care and have the best experience and to challenge your providers challenge the researchers when youre participating in Clinical Trials to make sure that you bet they know youre holding them accountable but one of the things we also have to do is get the Research Community out a bit segregated bubble the you know researchers recruit from their networks that are known to them to look well 98 percent of these researchers are are not black so they dont have black and brown people in their network so weve got to make sure that they go to other scientific meetings National Medical Association Others and build a collegial relationship with people who dont look like them however our problem is in actual segregation and we already know that if we could integrity and today we would in Health Disparities but the other thing to me is weve got to make sure that weve got leadership black and brown leadership whos making the decision who is going to suck in the research what becomes evidence depends on asking the questions who theyre asking how the data is being analyzed and we end up applying a body of evidence to people who had nothing to do with its creation in the 1st place so weve got to change fundamentally whos making those decisions and whos getting funding and its a link to a link and let me just slip in here greg millet because we were talking about trust lack of trust and very valid in this scene and great kind of a couple of suggestions now now what to do is have a listen. The 1st consideration is that there is a big difference between a theoretical vaccine and a real vaccine and you lately see changes in opinion when you have a real and effective vaccine that is available the 2nd thing that i think is important as well is it depends upon who is indorsing the vaccine theres a recent poll that came out this week that showed that 2 in 10 americans would take a vaccine if it were recommended by donald trump but 6 in 10 americans would take a vaccine if it were recommended by their doctor so its very clear that if there were a safe vaccine that was highly effective that was recommended by their doctor or a member of their family that you would likely see higher levels of africanamericans who take that vaccine so again i didnt mean to youve got people slanted up and he chief adrian king says things adrian sounds like you know what the problems are tell me about the Solutions Grant well. I was just going to 1st to piggyback off that last comment did happen and then and then im ok ill be joining. Yack york when he talked about this to study that showed that 6 out of 10 americans would take the vaccine who are those americans who they talk to who are who are they we dont have the accountability up comprehensively to really know how to address these solutions 1st step is accountability all you have to do to get a protocol approved by our beaches check off a box and say yes i plan to include blacks look at the role that lack of accountability to the f. D. A. That has systemic lee approved drugs devices and treatments knowing that the data has a boy is devoid of any inclusion of. Black people so we dont even have an accountability system in place to Start Talking about breaking down and making solutions in my opinion the 1st step is who are they and these other people who are in terms of who it depends on whos promoting it or whos saying it i mean the president of some been some very prestigious has starkly black colleges have publicly made it clear that they they are enrolling but i just said think its a going to need a willing announcement at the shows im just going to push it ok and already yes. A 32nd elevate have picture kate glenn would you take part in a kind of a 1000 vaccine trial yes or no i want. But he said. Absolutely not and primarily for me its because i know too much about Clinical Trials for back seeing to the warp speed concept and i it all of the accountability has been turned over to the private pharmacy looking it up and would you take the 1000 thats in child yes or no and when theres a National Scientific association made up of black researchers physicians Clinical Trial experts who have complete visibility and transparency into the data the analysis and the protocols and they say yes we endorse this then ill do it. Right. And it is going to thank you really preacha if mistake if they dont think. Through. Corruption it is the invisible behind a wall of silence. Corruption is not something to be told in the. Country. Lets destroy this war. In 2020 the free space encourages the heroes who are fighting against corruption this helps our communities to save the resources that we need in order to address the burning problems that affect us all. 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