Review Rett Syndrome Research Program At Boston Children's Hospital In massachusetts, united-states
Only 50% People Answered Yes For the Poll
Rett Syndrome Research Program At Boston Children's H
300 Longwood Ave
Suffolk,Others
Massachusetts,United-states - 02115
Keywords List : Hospital in united states , Hospital in massachusetts , Hospital in suffolk , Hospital in 02115 , Region in united states , Region in massachusetts , Region in suffolk , Region in 02115 , At boston , At children , At hospital , At syndrome , Children boston hospital , Children program , Children syndrome , Hospital program , Hospital research , Hospital syndrome , Program s , Research boston , Research children , Research program , Rett syndrome , S at , S boston , S children , S hospital , Boston at hospital children , Program at , Children at s , Hospital in massachusetts , At children , Children program , Children syndrome , Hospital program , Hospital research , Hospital syndrome , Program s , Research boston , Research children , Research program , Rett syndrome , S at , S children , S hospital , Program at , At program , Rett syndrome research , Rett syndrome research trust , Boston childrens hospital , Childrens hospital ,
Detailed description is Ranked #1 on the Best Children's Hospitals Honor Roll for 2014-15 by U.S.
News, BCH has one of the largest Rett Syndrome Programs in the country.
The Rett Syndrome Research Program at Boston Children’s Hospital is committed to pursuing novel research to improve the lives of children and adults living with RTT.
Our research projects focus on Rett syndrome and Rett-related disorders, such as, CDKL5, FOXG1 and MECP2 Duplication Syndrome.
We collaborate with local scientists from MIT and Harvard Medical School and are partnering with other Rett Syndrome Centers across the country.
The Rett Syndrome Research Program is led by Dr.
Mustafa Sahin.
.
.
The Research Team at Boston Children’s is made up of dedicated researchers working to better understand the underlying biology of the disease and identify innovative treatments to improve the quality of life of individuals with RTT.
Team members are available to support families and study participants as they partake in our many research studies, as well as ensure they have a positive experience while working with us to further our understanding of RTT..
.
We encourage all families to contact us if they are interested in current or future research opportunities.
If you would like to receive periodic updates on our research projects or be notified if your child may be eligible for one of our studies, please email us to be added to our patient registry.
.
.
*Please note: Although our research team works very closely with the Rett Syndrome Clinic, we are a separate entity.
If you are interested in learning more about the Rett Syndrome Clinic, you may visit their website at http://www.childrenshospital.org/centers-and-services/rett-syndrome-program or contact them via phone at (617) 355-8994.*.
.
To find out more about Rett Syndrome please visit RettSyndrome.org.
As stated on their website, RettSyndrome.org works “to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services.” Through their website you can find fantastic resources such as:.
- Support for new diagnoses.
- Fundraising and event information.
- Clinic information for the U.S., Canada, and Australia.
- Advice on various aspects of life with RTT like communication and schooling.
- Research and publication information.
.
For families in the New England area, the Rett Syndrome Association of Massachusetts (RSAM) provides great information on upcoming events in the area as well as news updates within the Rett community.
Together RSAM and the Rett Syndrome Research Program at BCH host annual lecture series for parents as well as the Blue Sky Day event every October.
You can find out more information on RSAM here: http://www.rettsyndromemass.org/Pages/default.aspx
Established in the recent years Rett Syndrome Research Program at Boston Children's Hospital in suffolk , massachusetts in united-states.
This is a well known establihment acts as one-stop destination servicing customers both local and from other of the city.
Over the course of its journey , this business has establihed a firm hold in the [category].
The belief that customer satisfaction is an important as it products and services , have helped this establihment garner a vast base of customers and continue to grow day by day
Foods is provided with high quality and are pretty much the highlight in all the events in our lives.
Sweets and food are the ideal combination for any foodies to try and this Rett Syndrome Research Program at Boston Children's Hospital is famous for the same.
This has helped them build up a loyal customer base.
They have started a long journey and ever since they have ensure the customer base remains the same and growing month on month.
As they are located in favourable location , becomes the most wanted space for the tourist.
For any kind and assistance , it is better to contact them directly during their business hours.
Premises has a wide parking area and need to avail special permissions for parking.
Pets inside the premises are not allowed and require additional permission.
Cashless payments are available and extra charges for the credit cards are levid.
They are listed in many of the food delivery networks for home delivery with appropriate charges.
They accept cards , cash and other modes of payments
Tips are not actually encouraged but customers are willing to offer any benefit as needed.
There you can find the answers of the questions asked by some of our users about this property.
This business employs inviduals that are dedicated towards their respective roles and put in a lot of effort to achieve the common vision and goals.
It is a effortless task in communiting to this establishment as there are various modes available to reach this location.
The establishment has flexible working timings for the employees and has good hygene maintained at all times.
They support bulk and party orders to support customers of all needs.
Frequently Asked Questions About This Location