I shouldn t have to beg for my life : B C woman can t afford treatment for painful disorder | iNFOnews infotel.ca - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from infotel.ca Daily Mail and Mail on Sunday newspapers.
‘I Shouldn’t Have to Beg for My Life’
A misunderstood disease and lack of support leaves one woman planning her medically assisted death. There may soon be more.
Moira Wyton is The Tyee’s health reporter. Follow her @moirawyton or reach her here. This reporting beat is made possible by the Local Journalism Initiative. SHARES Madeline was an actor and playwright until chronic illness changed her life. Her old headshot, she says, ‘is the face of promise lost.’
Photo supplied.
On a warm Saturday afternoon in May, Madeline was watching her friend’s young daughter open her birthday gifts. But as the girl sat under a tree in the park, tearing wrapping paper off a book about drawing horses, Madeline’s heart was breaking. “I don’t know if I will get to see her next birthday.”
Utah patients and advocates of the post-viral conditions gathered for a #MillionsMissing virtual event over Zoom Wednesday.
A diagnosis of myalgic encephalomyelitis/chronic fatigue syndrome, also known as ME/CFS, or fibromyalgia can mean people are missing from their own lives due to the symptoms of their disease, according to the Bateman Horne Center, a Salt Lake City clinic dedicated to supporting patients and studying the conditions.
About 80% of people who are diagnosed with those conditions contract them after suffering a viral illness, according to the Bateman Horne Center. Dr. Lucinda Bateman, the center s medical director, recently published research estimating that up to 10% of people who experience long-term symptoms from COVID-19 could go on to develop a chronic illness.
TORONTO It began with the typical COVID-19 symptoms for Angela Griffin back in March 2020. She developed a sore throat, headache, fatigue, body aches, and a tightness in her chest. When she visited the ER, she was unable to get tested for the disease because they were only testing health-care workers, recent travellers, and close contacts of confirmed cases at the time. However, the doctors told her she was clinically positive for COVID-19 based on her symptoms and to assume she was infected. That was only the beginning of what Griffin has described as a ârollercoaster of symptomsâ she has experienced since her initial illness, including migraines, body aches, chills, fever, shortness of breath, brain fog, fast heart rate, insomnia, and dizziness.
COVID-19 Long-Haul Symptoms Overlap With ME/CFS medscape.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from medscape.com Daily Mail and Mail on Sunday newspapers.