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Isabelle says the timing was right to get involved and spread awareness of the disease. “The community is strongly behind us, we haven’t been forgotten,” said Isabelle. “The community has been very gentle and on our side. What we want to do is get involved, we believe that if we put more awareness to this horrible disease, there could more government funding for DIPG research.” She added that tissue samples were given by Adaura to help with research efforts. Fort St John Mayor Lori Ackerman says more awareness is needed for serious childhood illnesses. “While the prognosis for a child diagnosed with DIPG is not good, what bothers me is it’s the same prognosis that would’ve been received 40 years ago and that is just wrong,” wrote Ackerman. “We have world-class researchers in our province and in our nation and we need to encourage them to do some research on this.”

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