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Bench unveiled in North Kilkenny in fond memory of Gerry O Reilly
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I m a bit more cautious now | Cork Independent
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Having a nosebleed is not pleasant, but, thankfully, for most of us, it is not a regular occurrence. However, Shannon Carey has endured them, and other instances of heavy bleeding, her entire life as she has a condition called Von Willebrand Disorder (VWD), which affects the bloodâs ability to clot.
âI was first diagnosed with VWD as a baby, but didnât receive a full diagnosis until I was about seven due to the levels of it changing,â says the 21-year-old student. âI was diagnosed initially because when my older sister Aoife was a young child, she had bruising on her back which didnât seem normal and, after investigation, she was diagnosed with Platelet Defect Disorder, which is another blood disorder.
Since the pandemic, those with underlying health conditions have been deemed high-risk if infected with Covid-19, yet studies have revealed interesting findings with regard to those living with this bleeding disorder.
VWD affects both men and women and is the most common inherited bleeding disorder with approximately 1 in 1,000 of the population being affected.
In men or children, easy bruising or frequent, heavy nosebleeds may be the first sign of a bleeding disorder.
The most common warning sign for women is heavy periods, and one in five of those with heavy periods will have an underlying bleeding disorder.
In VWD, the von Willebrand protein is lower than normal in the blood. Normal levels are above 50 per cent, while in VWD, levels are below 30 per cent.