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Only 20 out of 107 rare disease patients at KEM hospital avail of Centre's grant for treatment | Mumbai News

The Union government had also established the Digital Portal for Crowd Funding and Voluntary Donations for Patients of Rare Diseases to register such patients and raise money for their treatment via crowdfunding. ....

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Despite help from Centre, patients with rare diseases, kin continue to suffer

Rare diseases are lifelong conditions. Approximately 95 per cent of them have no approved treatment. In cases where drugs are available, they are prohibitively exorbitant. Fakir, who earns less than Rs 10,000 per month, says his son's treatment costs Rs 30 lakh per annum. ....

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