Children with sickle cell disease rely on daily doses of penicillin to prevent life-threatening infections. But lately, some are finding it hard to fill their prescriptions.
Children with sickle cell disease rely on daily doses of penicillin to prevent life-threatening infections. But lately, some are finding it hard to fill their prescriptions.
Riley Hospital treats sickle cell patients minds with book club
The hospital has given out over 100 books to children living with sickle cell disease as part of the Sickle Cell Story Book Club. Author: Sarah Jones Updated: 7:32 AM EDT June 18, 2021
INDIANAPOLIS A new book club at Riley Hospital for Children at IU Health is bringing together families dealing with a rare disease.
The hospital has given out over 100 books to children living with sickle cell disease as part of the Sickle Cell Story Book Club.
While the disease has been known for over 100 years, doctors specialized in treating sickle cell say it is underfunded because it is rare and affects the minority population. Screening for the disease in newborns is mandatory in every U.S. state, plus the District of Columbia, according to the American Academy of Family Physicians Foundation.