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'When copper stays in your body' - Watch piece on Ghana's first Wilson's disease victim

'When copper stays in your body' - Watch piece on Ghana's first Wilson's disease victim
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Activities for 2021 Rare Disease Day go virtual in the wake of COVID

Activities for 2021 Rare Disease Day go virtual in the wake of COVID
LISTEN
FEB 18, 2021
As part of efforts to ensure strict adherence to COVID-19 protocols, activities lined up for this year s 2021 edition and commemoration of the World Rare Disease Day which falls on the 28th of February will be done online with a series of virtual engagements with some selected schools.
This was disclosed by the Executive Director of Rare Disease Ghana Initiative, a Non-Governmental Organisation, Mr. Samuel Agyei Wiafe a Clinical Psychologist during a media briefing in Accra.
He further indicated that this year s event will engage the Association International School and the Tema International School respectively as part of the School Activation event. ....

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More support needed to help people living with Rare Diseases

More support needed to help people living with Rare Diseases
LISTEN
FEB 18, 2021
It has emerged that Ghana lacks a policy framework meant to deal with health matters in relation to 7,000 prevalent rare diseases, and also the right treatment and the needed support for victims who suffer such undiagnosed conditions of health.
A rare disease is any disease that affects a small percentage of the population. Most rare diseases are genetic and thus are present throughout the person s entire life, even if symptoms do not immediately appear.
Many rare diseases appear early in life, and it is always likely about 30% of children with rare diseases will die before reaching their fifth birthday. ....

Samuel Agyei Wiafe , Governmental Organisation , Rare Disease Ghana Initiative , Rare Diseases Ghana Initiative , Rare Disease Community , Rare Diseases , Non Governmental Organisation , Executive Director , Clinical Psychologist , Orphan Drug , Rare Disease Day , Disease Ghana Initiative , Diseases Ghana Initiative , Birth Defects , World Birth Defects , அரசு ஆர்கநைஸேஶந் , ரேர் நோய் கானா முயற்சி , ரேர் நோய்கள் கானா முயற்சி , ரேர் நோய் சமூக , ரேர் நோய்கள் , அல்லாத அரசு ஆர்கநைஸேஶந் , நிர்வாகி இயக்குனர் , மருத்துவ உளவியலாளர் , ஆர்ஃபந் மருந்து , ரேர் நோய் நாள் , நோய் கானா முயற்சி ,