Two hours. [background noises] [background noises] good morning the Senate Special committee will come to order welcome everybody. Welcome to the committees eighth hearing of the one her 18th congress about Drug Development for rare and serious diseases. As is the tradition of the committee, the aging Committee Ranking member, Ranking Member brought in this case will offer an opening statement. Thank you, senator. Thank the witnesses for coming and for all of the folks from around the country here today. There are over 7000 rare progressive and serious diseases known to man. It is estimated 95 black treatment. Yet in my time et cetera there is not been one Senate Hearing to examine promising therapies for people with rare progressive and serious diseases. The room is packed with people, patients and caregivers that live in this reality every single day. Right here, 350 patient stories from 44 states. This is long overdue. People that watch their bodies deteriorate in real time. Family
Among those speaking at the republican jewish coalitions 2023 Leadership Conference in las watch live at noon eastern on cspan saturday, or online at cspan. Org. Up next, testimony on access to research and treatment for patients with Rare Diseases. Advocates for medical ethics and therapeutic industry professionals also testified to provide insight on the fda Clinical Trial process. This hearing with the Senate Special Legion Committee is about two hours. With the Senate Special aging committee is about two hours. Good morning. Welcome to the committees eighth hearing of the 1 18 congress about Drug Development for rare and serious diseases. As is the tradition of the committee, the aging Committee Ranking member, Ranking Member braun in this case, will offer an opening statement. Ranking member braun thank you, senator. I thank the witnesses for coming and for all the folks from around the country who are here today. There are over 7000 rare and serious diseases known to man. Its est
Patients with Rare Diseases. Advocates for medical ethics and a therapeutic industry professionals also testified to provide insight on the fda Clinical Trial process. This hearing before the Senate Special Agent Committee is about two hours. [background noises] [background noises] good morning the Senate Special committee will come to order welcome everybody. Welcome to the committees eighth hearing of the one her 18th congress about Drug Development for rare and serious diseases. As is the tradition of the committee, the aging Committee Ranking member, Ranking Member brought in this case will offer an opening statement. Thank you, senator. Thank the witnesses for coming and for all of the folks from around the country here today. There are over 7000 rare progressive and serious diseases known to man. It is estimated 95 black treatment. Yet in my time et cetera there is not been one Senate Hearing to examine promising therapies for people with rare progressive and serious diseases. Th
Good morning. The health labor on education and pension will come to order. This is another bipartisan hearings, which means senator murray and i have agreed on the subject and the witnesses. In falkt i would say every member in the committee would probably agree on the subject and Witnesses Today because this is a hearing entitled implementation of the cures act. The path forward to hear from dr. Frances collins, the National Institutes of health and dr. Gotlieb, the commissioner of food and drugs. Senator murphy will have a hearing wednesday on another reorganization which they played a major role in. We look forward to that. Senator murray and i will each have an Opening Statement and then introduce our panel of witnesses. After, senators will have five minutes of questions. In 2007 doug oliver, who is in the front row i believe, a Computer Programmer began to have trouble, had his drivers license taken away and declared legally bliepd. It was a rare form of macular degeneration. He
Good morning. The health labor on education and pension will come to order. This is another bipartisan hearings, which means senator murray and i have agreed on the subject and the witnesses. In falkt i would say every member in the committee would probably agree on the subject and Witnesses Today because this is a hearing entitled implementation of the cures act. The path forward to hear from dr. Frances collins, the National Institutes of health and dr. Gotlieb, the commissioner of food and drugs. Senator murphy will have a hearing wednesday on another reorganization which they played a major role in. We look forward to that. Senator murray and i will each have an Opening Statement and then introduce our panel of witnesses. After, senators will have five minutes of questions. In 2007 doug oliver, who is in the front row i believe, a Computer Programmer began to have trouble, had his drivers license taken away and declared legally bliepd. It was a rare form of macular degeneration. He