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Acadia adds awareness-raising docuseries to Rett syndrome site

Acadia adds awareness-raising docuseries to Rett syndrome site
fiercepharma.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from fiercepharma.com Daily Mail and Mail on Sunday newspapers.

New Hampshire , United States , Magnolia Tesler , Brendan Teehan , Acadia Pharmaceuticals , Comedy Central , Lim Magnolia ,

This Family's Lives Were Turned Upside Down by a Rare Disease Diagnosis, So They Decided to Hit the Road During the Pandemic

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Credit:
Courtesy of the Tesler family.
There we were, standing at the foot of a mountain a mountain we weren t planning on climbing. Life had taken a turn and we didn t know what to do, but we knew we had to climb. We didn t have a choice. I m not talking about my daughter s diagnosis of Rett Syndrome, a rare neurological disorder. That would certainly be considered a mountain of obstacles that we would face as parents, as partners, as a family. I m talking about a literal mountain; the one I stood at in the Badlands with my daughter, staring up toward its summit. She just watched her younger brother and dad climb, now she wanted a turn. ....

South Dakota , United States , Magnolia Tesler , Jenny Tesler , Lives Were Turned Upside Down , Rare Disease Diagnosis , Road During , Rett Syndrome , I Ve Learned From Parenting , Child With , Lessons From Parents , Kids With Special , தெற்கு டகோட்டா , ஒன்றுபட்டது மாநிலங்களில் , உயிர்கள் இருந்தன திரும்பியது தலைகீழாக கீழ் , ரேர் நோய் நோயறிதல் , சாலை போது , ரேட்ட் நோய்க்குறி , நான் வே கற்று இருந்து பெற்றோருக்குரியது , குழந்தை உடன் , பாடங்கள் இருந்து பெற்றோர் , கீட்ஸ் உடன் சிறப்பு ,