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Ipswich teen with Cockayne Syndrome celebrates 16th birthday

It was always the aim of the Barden family to throw their daughter Ella a special 16th birthday, a celebration they never thought she would get to… ....

United Kingdom , Luke Barden , Jodie Barden , Ella Barden , Amy Halliday , Mount Snowdon , Cockayne Syndrome , Anglian Daily Times , Mrs Barden , Manor Ballroom , Barmy Bingo , Giant Gestures ,

Ipswich teen with Cockayne Syndrome to mark 16th birthday | East Anglian Daily Times

An Ipswich family is planning huge celebrations for their daughter who was given a life expectancy of 12. ....

Jodie Barden , Ella Barden , Mount Snowdon , Cockayne Syndrome , Cockayne Awareness , Anglian Daily Times , Barmy Bingo , Manor Ballroom ,

Ipswich teen with Cockayne Syndrome to mark 16th birthday

An Ipswich family is planning huge celebrations for their daughter who was given a life expectancy of 12. ....

Jodie Barden , Ella Barden , Mount Snowdon , Cockayne Syndrome , Cockayne Awareness , Barmy Bingo , Manor Ballroom ,

Ipswich teen with Cockayne Syndrome to mark 16th birthday | East Anglian Daily Times

An Ipswich family is planning huge celebrations for their daughter who was given a life expectancy of 12. ....

Jodie Barden , Ella Barden , Mount Snowdon , Cockayne Syndrome , Cockayne Awareness , Anglian Daily Times , Barmy Bingo , Manor Ballroom ,

Eight-year-old with rare condition to climb Mount Snowdon

Chloe Barden, Ipswich, suffers with Cockayne Syndrome, will walk up the highest mountain in Wales on March 28, Mount Snowdon to raise money for Amy & Friends ....

Chloe Barden , Jodie Barden , Mount Snowdon , Cockayne Syndrome , Lr Alex ,