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“ Give her time and she’ll surely catch up, they said. She’ll be fine. . When Dalia was 9, she lost her ability to walk, talk, eat, and breathe without a ventilator."
Global Genes has created a series of toolkits, videos, and checklists to share insights from rare advocates and experts who have personal experience - professional and personal. This patient story was featured in our genetic testing toolkit, Diagnosis or No Diagnosis – What To Do Next? Find more information and download all four free Genetic-Based Diagnosis toolkits and other resources here.