We sit down with Denise Reich, a patient advocate, to explore her journey of navigating the health care system with Ehlers-Danlos syndrome (EDS). Denise shares her experiences from the initial mention of EDS during an ophthalmology appointment to finally receiving a formal diagnosis. We delve into the challenges she faced advocating for herself amidst dismissive attitudes from health care professionals and how the diagnosis of EDS has impacted her medical care. Denise sheds light on common misconceptions surrounding EDS, the negative perceptions within the medical community, and the steps needed to address them. Through her story, we uncover the importance of early recognition and validation of symptoms in patients, along with empowering messages for those struggling to have their concerns taken seriously.
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