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Charity ball celebrates life of 'beautiful, lively, happy' five-year-old lost to Bloom Syndrome

Parents thought daughter was growing slowly - then found she had disorder affecting just 300 people

Parents thought daughter was growing slowly - then found she had disorder affecting just 300 people
bristolpost.co.uk - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from bristolpost.co.uk Daily Mail and Mail on Sunday newspapers.

Parents thought daughter was growing slowly - then found she had disorder affecting just 300 people

Parents thought daughter was growing slowly - then found she had disorder affecting just 300 people
gloucestershirelive.co.uk - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from gloucestershirelive.co.uk Daily Mail and Mail on Sunday newspapers.

Parents thought daughter was growing slowly - then found she had disorder affecting just 300 people

Parents thought daughter was growing slowly - then found she had disorder affecting just 300 people
somersetlive.co.uk - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from somersetlive.co.uk Daily Mail and Mail on Sunday newspapers.

Parents thought daughter was growing slowly - then found she had disorder affecting just 300 people

Parents thought daughter was growing slowly - then found she had disorder affecting just 300 people
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