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Patients With Plasminogen Deficiency Should Receive Care at Hemophilia Treatment Centers: Dr Amy Shapiro

Amy Shapiro, MD, medical director, Indiana Hemophilia and Thrombosis Center, discusses the clinical trials that influenced plasminogen's (Ryplazim; Kedrion Biopharma) FDA approval, as well as details valuable information for the treatment of patients with plasminogen deficiency.

United-states
Indiana
Athens
Attikír
Greece
American
Kedrion-biopharma
Amy-shapiro
Hemostasis-network-athens
Thrombosis-center
Indiana-hemophilia
American-thrombosis

Ultra-Rare Inherited Bleeding Disorders: A Research Agenda for the Future

Investigators address 2 questions: How can we better understand the biology of these rare disorders? How can we stimulate research and optimize the regulatory process to improve diagnosis and targeted treatment?

Irvine
California
United-states
Orange-county
American
Researchgate-diane-nugent
Diane-nugent
Pediatric-hematology-division
University-of-california-at-irvine
Department-of-pediatrics
Building-the-foundation-for-ultra
National-hemophilia-foundation

WFH Gene Therapy Registry: now live!

/PRNewswire/ - To ensure patient safety remains at the forefront of the work of the World Federation of Hemophilia (WFH), we have developed a registry to.

Montreal
Quebec
Canada
United-states
American
Hemgenix-hem
Roctavian-hem
Us-national-hemophilia-foundation
International-society-on-thrombosis
Drug-administration
European-haemophilia-consortium

World Federation of Hemophilia: WFH Gene Therapy Registry: now live!

MONTREAL, Jan. 18, 2023 /PRNewswire/ To ensure patient safety remains at the forefront of the work of the World Federation of Hemophilia (WFH), we have developed a registry to monitor the

Montreal
Quebec
Canada
United-states
American
Hemgenix-hem
Kostenloser-wertpapierhandel
Roctavian-hem
Neha-suchak
Us-national-hemophilia-foundation
World-federation-of-hemophilia-logo
International-society-on-thrombosis

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