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Funding supports Australians living with rare disease


Date Time
Funding supports Australians living with rare disease
UNSW Sydney researchers have been awarded $1.9 million for a project that will develop and deliver rare disease resources, education and training.
UNSW has been awarded $1.9 million in federal government funding for the Rare Awareness, Education, Support and Training (RArEST) project. The project will develop and deliver rare disease awareness resources, education, support, and training with a focus on mental health, and social and emotional wellbeing.
The funding is part of the $3.3 million announced by federal Minister for Health and Aged Care, Greg Hunt, to support the approximate two million Australians living with one of 7000 rare diseases. ....

Adam Jaff , Yvonne Zurynski , Michelle Farrar , Greg Hunt , Gareth Baynam , Elizabeth Emma Palmer , Macquarie University , School Of Women , Children Health , University Of Western Australia , Medicine Health , Rare Awareness , Aged Care , Professor Adam Jaff , Associate Professor Michelle Farrar , Rare Voices Australia , Professor Gareth Baynam , Western Australia , Associate Professor Yvonne Zurynski , National Strategic Action Plan , Rare Diseases , Action Plan , Torres Strait Islander , மைக்கேல் ஃபரார் , கிரெக் வேட்டை , மக்வரீ பல்கலைக்கழகம் ,

$3.3 million to support Australians living with rare disease


The Hon Greg Hunt MP
Minister for Health and Aged Care
The Morrison Government is providing $3.3 million to support the approximate two million Australians living with a rare disease, providing them with support, raise awareness and create new educational programs.
The new funding will drive the development and delivery of awareness and education resources, and care and support services, for people living with a rare disease, their families and carers, health professionals and the wider population.
Minister for Health and Aged Care, Greg Hunt, said the funding would help to provide new supports to those living with rare diseases.
“Rare diseases are defined as those that affect fewer than 5 in 10,000 people. It’s estimated there are more than 7,000 rare diseases affecting about 8% of the Australian population. Most have genetic origins and many have no known cure,” Minister Hunt said. ....

Greg Hunt , Australian National University , National Strategic Action Plan For Rare Diseases , University Of New South Wales , Childhood Dementia Initiative , Australian Government Department Of Health , National Childhood Dementia Awareness , Morrison Government , Aged Care , National Strategic Action Plan , Rare Diseases , New South Wales , Rare Disease Awareness , Training Project , Voices Australia , Rare Awareness Education Project , Rare Voices Australia , Australian Government Department , கிரெக் வேட்டை , ஆஸ்திரேலிய தேசிய பல்கலைக்கழகம் , தேசிய மூலோபாய நடவடிக்கை திட்டம் க்கு ரேர் நோய்கள் , பல்கலைக்கழகம் ஆஃப் புதியது தெற்கு வேல்ஸ் , குழந்தை பருவம் முதுமை முயற்சி , ஆஸ்திரேலிய அரசு துறை ஆஃப் ஆரோக்கியம் , மோரிசன் அரசு , வயதேறிய பராமரிப்பு ,

Australia invests $3.3M to support people with rare disease

Australia provides $3.3M to support people with rare disease

Approval processes to be scrutinised for new drugs and medical technologies


Date Time
Approval processes to be scrutinised for new drugs and medical technologies
On Thursday 11 and Friday 12 March 2021 the House of Representatives Standing Committee on Health, Aged Care and Sport will hold two days of public hearings in Sydney as part of the Committee’s ongoing inquiry into approval processes for new drugs and novel medical technologies in Australia.
The Committee will hear evidence from numerous stakeholders including patient advocacy groups, clinician and research bodies, and industry. Witnesses will include rare disease advocates from Rare Voices Australia, and representatives from the Medical Technology Association of Australia. The program for the hearings is available at the Committee’s website. ....

New South Wales , Technology Association Of Australia , House Of Representatives Standing Committee On Health , Representatives Standing Committee , Aged Care , Rare Voices Australia , Medical Technology Association , Terms Of Reference , Medical Devices , புதியது தெற்கு வேல்ஸ் , தொழில்நுட்பம் சங்கம் ஆஃப் ஆஸ்திரேலியா , வீடு ஆஃப் பிரதிநிதிகள் நின்று குழு ஆன் ஆரோக்கியம் , பிரதிநிதிகள் நின்று குழு , வயதேறிய பராமரிப்பு , ரேர் குரல்கள் ஆஸ்திரேலியா , மருத்துவ தொழில்நுட்பம் சங்கம் , விதிமுறை ஆஃப் குறிப்பு , மருத்துவ சாதனங்கள் ,