Review Myositis Support And Understanding In sussex, delaware, united-states | Organisation In Sussex
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Myositis Support And Understanding
9125 N Old State Rd
Sussex,
Delaware,United-states - 19960
Detailed description is MSU uses this page to promote information from our website, to help spread awareness of Myositis, along with providing the latest news and updates.
Myositis Support and Understanding is a 501(c)3 nonprofit organization founded by Myositis patients, for Myositis patients, and care partners.
We began in 2010 as 1 FB support group and a goal of one day being able to help patients under a nonprofit.
That goal came true in 2015, with much work and the support of many.
We now have 3 FB support groups that offer education, emotional and spiritual support, and even laughter.
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Our current programs and services include financial assistance, education, support, advocacy, and video chat support and educational sessions.
We try to provide each member with a personal experience while building lasting relationships, as it can be lonely living with a rare disease..
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Our Financial Assistance program covers household expenses, medical bills, and travel expenses for myositis patients to see a specialist who may provide them with more information and treatment options that others are not aware of.
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Also, we will advocate for our members and Myositis patients with all levels of policy-makers, insurance companies, and other medical service decision-makers.
Our vision also includes contributing any excess funds, if any, to Myositis cure- and treatment-centered research organizations to help further our shared goals..
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We believe in a “Knowledge in Action” approach.
MSU’s board consists of real patients with Myositis, so we are able to fully understand what other patients go through.
Our knowledge of Myositis, among its various treatments, complications, hardships and struggles give us a powerful base from which to formulate action plans.
We are a tight-knit group that supports each other and others in our community..
Our drive to support and help one another motivates us to help other patients in any way we can.
Through education, online support groups, video chats, and our financial assistance program, we are able to put our knowledge into action and truly do all that we can to assist and encourage those with Myositis..
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We provide wonderful opportunities for members, patients, and the general public to get involved through volunteering.
If you are looking to get involved, please contact us today! To volunteer or join our board, you do not have to have myositis.
We just ask that you are willing to learn about it.
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Why should you care about Myositis?.
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Myositis is one of over 80 autoimmune conditions of which there is no cure.
Myositis is known to hit at any time of life.
Polymyositis and Dermatomyositis can both manifest during childhood and adulthood.
Inclusion Body Myositis most commonly occurs in later adulthood.
While there are presently only an estimated 50,000-75,000 myositis patients in the United States, as diagnostic criteria and tests get more sophisticated more people with undifferentiated autoimmune symptoms will likely be identified as having myositis.
As this happens it is more and more possible that you will know someone affected by myositis..
Established in the recent years Myositis Support and Understanding in sussex , delaware in united-states.
This is a well known establihment acts as one-stop destination servicing customers both local and from other of the city.
Over the course of its journey , this business has establihed a firm hold in the [category].
The belief that customer satisfaction is an important as it products and services , have helped this establihment garner a vast base of customers and continue to grow day by day
Foods is provided with high quality and are pretty much the highlight in all the events in our lives.
Sweets and food are the ideal combination for any foodies to try and this Myositis Support and Understanding is famous for the same.
This has helped them build up a loyal customer base.
They have started a long journey and ever since they have ensure the customer base remains the same and growing month on month.
As they are located in favourable location , becomes the most wanted space for the tourist.
For any kind and assistance , it is better to contact them directly during their business hours.
Premises has a wide parking area and need to avail special permissions for parking.
Pets inside the premises are not allowed and require additional permission.
Cashless payments are available and extra charges for the credit cards are levid.
They are listed in many of the food delivery networks for home delivery with appropriate charges.
They accept cards , cash and other modes of payments
Tips are not actually encouraged but customers are willing to offer any benefit as needed.
There you can find the answers of the questions asked by some of our users about this property.
This business employs inviduals that are dedicated towards their respective roles and put in a lot of effort to achieve the common vision and goals.
It is a effortless task in communiting to this establishment as there are various modes available to reach this location.
The establishment has flexible working timings for the employees and has good hygene maintained at all times.
They support bulk and party orders to support customers of all needs.
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