Review Melissa Jane Ball Memorial Fund For Pediatric Cardiac Research In cecil, maryland, united-states | Home In Cecil

3 Votes

3 Votes

Melissa Jane Ball Memorial Fund For Pediatric Cardiac Research

Cecil,

Maryland,United-states - 21921

Detailed description is Melissa was born with a congenital heart defect, Transposition of the Great Vessels.
December 29, 2014, Melissa passed away at 21 months old.
Melissa had a Congenital(born with) Heart Defect.
There are many many different types of congenital heart defects you can have.
She was born with Transposition of the Great Vessels and Great Arteries as well as a hole in her heart.
Simply put, her two arteries to the heart were flipped as well as her two bottom ventricles in her heart.
The larger artery meant to circulate blood throughout her body was sending too much to her lungs and the smaller one, meant to go to the lungs was not sending enough through her body..
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I called Melissa my Butterbean.
It's because the first time I saw her, it was her sonogram picture.
She looked just like a little butterbean in her mommy's belly.
From that day forward and to this day, I call her my Butterbean! Melissa had her very first open heart surgery at 1 week old!! It was a temporary fix so that she could grow and get stronger in order for her to have everything fixed.
That year, besides extra doctor visits and extra powder in her formula to help gain weight, went as normal as any other baby.
She smiled, laughed, sat up, talked, and crawled, a little early than most babies, but, just like any other baby.
Family traditions were held.
She went to the cabin, and the apple butter festival, and got her bath in the sink, just like every baby did before her at the cabin(a family tradition on her dad's side).
She went trick or treating on Halloween, so mom and dad could have candy, of course! She was the cutest little pumpkin! Thanksgiving was spent in Virginia with her great grandparents and her great-great grandmother.
Christmas was spent visiting all of her family at home in Maryland.
She visited her uncle Bobby's where she saw a choo-choo in a tree for the first time!! She had the BEST Minnie Mouse first birthday any girl could ask for! Her big open heart surgery was at 13 months old which was to repair the arteries, the ventricles, and the hole in her heart.
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As much pain as Melissa was in, and it was a lot, she always had a smile on her face!! She was such a very happy baby!! She came through the surgery better than anyone expected, except her family, we all knew how amazing she was!! But when Melissa went downhill, she went FAST!! Just an idea of how fast, she went for her complete one week checkup after being released from the hospital at 10am, everything was healing fantastic! Doctor gave her a clean bill of health, no issues, healing great! We went home, she ate and played as normal.
She woke from a nap and was in distress at 5pm.
We took her to the hospital.
By the time the doctor came in around 9pm, he lifted her dress and where her staples were had become all inflamed with clear signs of infection of some sort!! Less than 12 hours before, she was given a clean bill of health!! The following morning, they removed her staples.
As soon as the first one was removed, infection came oozing out like a volcano!! .
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Thanks to her surgeon, Dr.
Kaushal, who was able to go in and clean out all of the infection.
In the beginning of June, after about 3 weeks in the hospital, she got to come home, but with a PICC line so that she could receive antibiotics twice a day intravenously for another month.
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Although all the infection was gone, we believe she never fully recovered from such an ordeal.
She was in and out of the hospital for the following few months after that for “failure to thrive“, no matter what she ate, she just couldn’t gain weight.
She was eating ice cream at 10 in the morning and peanut butter by the spoon 10 at night, anything to get her to gain weight!! She was 17 months old and couldn’t get her over 16 pounds!! Late September, she was put under ‘house arrest’.
She couldn’t be around strangers or in an unfamiliar place because her immune system still hadn’t build itself back up and especially now since winter was coming.
We had to do everything possible with cold and flu season around the corner..
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Early October, we found out she was going be a big sister.
Halloween came and went, she was the cutest strawberry no one ever saw.
Thanksgiving was spent with all who love her.
She was showing signs of improvement, eating well, but still gaining next to nothing.
Because she couldn’t go to the mall like other children to see Santa, her uncle Bobby made the best Santa.
She wanted to know where the choo choo was? Nobody but her remembered that uncle Bobby had a choo choo train out the year before, WHEN SHE WAS 9 MONTHS OLD!! She was as happy as we had ever seen!! The whole family celebrated on December 13th, she was finally up to 19 pounds!!!.
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Melissa was not like most babies.
Christmas day came.
Her mommy and daddy walked her into the living room to see what Santa had brought her.
When it finally hit her that the toys were for her, she didn’t storm through them.
She went to each and every one, unwrapped each and every gift.
And with each gift she received, she stopped and played a few minutes with each one, before moving to the next one.
What toddler does that? Did she know something we didn’t? .
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Melissa spent Christmas visiting family, opening gifts, nothing out of the ordinary, no place unfamiliar to her.
The evening of the 26th, she developed a runny nose.
The 27th of December, she still had a runny nose, but it was clear so we continued to give her her Clariten.
Sunday morning, Melissa woke with a slight cough.
Our knowledge of knowing how fast she goes downhill, we decided that it would be best to take her to the hospital, just to be safe.
It wasn’t like the other times, no signs of distress, no loss of appetite, just a safety measure..
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Her mom and dad put her in the car and headed for Baltimore.
Again.
Just to be safe..
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I proceeded to get ready, not in a rush, it was just a precaution.
I got there about and hour or so later.
Just in time enough to put my pocketbook down, say hi, get a quick update while they tried for the last time to get an IV.
The nurse said she wasn't able to get one and they weren't going to try again for a while and let her calm down I leaned over, gave her a kiss on her forehead and told her, “Gammy's here, I love you.” Two seconds later, our whole world came to a screeching halt..
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Melissa's heart rate spiked to 256 and she started seizing.
I yelled, “She’s seizing!!” WHAT WAS HAPPENING!?! I was there for all of 2-3 minutes!! Seeing her body seize is a memory I will forever have in my head!.
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Nurses and doctors came running in from everywhere and we were quickly rushed out of the room as they started CPR.
Kirsten(mom), John(dad) and I were taken to a waiting room and they said they would update us as soon as they could.
We immediately started calling family not knowing what was going on.
I called Mommom Kathy and Poppop Skip Miller, John's grandparents, who were already getting ready to come to the hospital, I told them to drop everything and get to the hospital immediately!! It was very hard trying to control myself so that they, and the rest of the family, could understand what I was saying.
I called my husband, Bobby.
Kathy called John's father and stepmom, Donny and Julie, and told them to get there now!! I wanted my prayer warriors to begin to pray for her, so I took to Facebook.
All I could post was for everyone to please please pray for Melissa Jane like you have never prayed before!! .
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Honestly, the next few hours are a blur of memories of calling family, texting, crying and pleading to God to please just don't take her, we need her here!! We anxiously awaited each update, all of which said they had lost her heartbeat and were working tirelessly to revive her and explaining the steps they were taking to make that happen.
All any of us could say was please don't give up on her, whatever you do, just don't give up!! After 72 minutes they were able to get her heartbeat back.
It was the absolute longest 72 minutes of our lives!!.
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Next step, assess what kind of damage was done to her little body without a steady heartbeat for so long.
They already had her hooked up to an ECMO(a machine that takes blood and removes carbon dioxide and replaces it with oxygen and pumps it back into the body) while they were trying to resuscitate her.
They got her moved into her own room in the PICU so all of us could finally go in and see her and kiss her beautiful face.
They said her brain showed there was activity, but they weren't sure what that meant because the brain is still so unknown.
A big concern was that her pupils weren't the same size..
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We spent our time kissing her face, holding her hand, praying to God for just one more miracle.
We told her how much all of us love her so very very much.
All of us had our chance to go in and talk to her.
Although it was probably an hour or so, it seemed to have been mere minutes, nurses came rushing in her room, just as they did earlier that day.
Only this time, our deepest fears came to life..
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The doctor came in and told us that Melissa had suffered a brain bleed, hemorrhage, again, not to clear on what medical term he had used(I spoke to a nurse who said that her pupils had blown so they ran more tests to find out that what brain function she did have was gone).
All I knew was that my world ended, our world ended, there was only unimaginable pain and unbelievable sorrow..
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I know the pain of loss, I have felt the pain of loss.
This is a pain like no other pain, the loss of a child is an indescribable pain.
The pain reaches your soul, it takes a piece of your heart.
I never knew a pain like this was even possible..
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That is when I decided that Melissa's death had to have a meaning.
She couldn't be gone and that just be the end of it.
There are so many other families that suffer the same pain we have every day! People need to hear our stories.
There needs to be a face to the loss we share to those who have passed from congenital heart defects.
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(the rest of this is under the heading MISSION).


Established in the recent years Melissa Jane Ball Memorial Fund for Pediatric Cardiac Research in cecil , maryland in united-states.


This is a well known establihment acts as one-stop destination servicing customers both local and from other of the city.

Over the course of its journey , this business has establihed a firm hold in the [category].

The belief that customer satisfaction is an important as it products and services , have helped this establihment garner a vast base of customers and continue to grow day by day

Foods is provided with high quality and are pretty much the highlight in all the events in our lives.

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This has helped them build up a loyal customer base.

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As they are located in favourable location , becomes the most wanted space for the tourist.

For any kind and assistance , it is better to contact them directly during their business hours.

Premises has a wide parking area and need to avail special permissions for parking.

Pets inside the premises are not allowed and require additional permission.

Cashless payments are available and extra charges for the credit cards are levid.

They are listed in many of the food delivery networks for home delivery with appropriate charges.

They accept cards , cash and other modes of payments

Tips are not actually encouraged but customers are willing to offer any benefit as needed.

There you can find the answers of the questions asked by some of our users about this property.

This business employs inviduals that are dedicated towards their respective roles and put in a lot of effort to achieve the common vision and goals.

It is a effortless task in communiting to this establishment as there are various modes available to reach this location.

The establishment has flexible working timings for the employees and has good hygene maintained at all times.

They support bulk and party orders to support customers of all needs.

Qus: 1).what is the mode of payment accepted ?

Ans: Cash , Credit Card and Wallets

Qus: 2).What are the hours of operation ?

Ans: Open all days mostly from 9:30 to 8:30 and exceptions on Sundays. Call them before going to the location.

Qus: 3).What is the Latitude & Longtitude Of the location?

Ans: Latitude of the location is 39.596859 Longtitude of the location is - -75.8280869

Qus: 4).What is the phone number Of the location?

Ans: Phone number of the location is - (443) 910-1665

Qus: 5).What is the email of the business?

Ans: Email address is - mjbmemorialfund@gmail.com