Review EDS Ride For A Cause In montgomery, maryland, united-states | Charter Service In Montgomery

2 Votes

2 Votes

EDS Ride For A Cause

Montgomery,

Maryland,United-states - 20817

Detailed description is EDS Ride for a Cause - events that bring together local cycling groups & studios w/ non-profits that support Ehlers-Danlos Syndrome research & resources.
What is Ehlers-Danlos Syndrome (EDS)?.
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EDS is the most common connective tissue disorder, but has an average delay to dx of 21 years (Hamonet et al., 2012), because patients do not fit into a perfect medical box and not within one speciality of medicine.
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"Symptoms Evidencing the Severity of this Disease have been Ignored.
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The severity of this disease and its best diagnostically signs are:.
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• Proprioceptive disorders sometimes responsible for very severe difficulties of motor control (pseudo palsies), widespread, acute pain, resisting to "pains killers", important breathing difficulties..
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• Dysautonomia (Bravo, Sanhueza, & Hakim, 2012) with unstable blood pressure (mainly hypotension), thermoregulation and vessels motricity disorders, tachycardia crisis, considerable fatigue, digestive and bladder dysfunctions..
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• Disorders of the sensorial functions blurring the perception of external environment..
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• Hemorrhages..
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• Totally unnoticed cognitive alterations (memory, attention, orientation), likely a secondary effect of the dysfunction of proprioceptive function (acting almost as a sixth sense) complete, together with some psychopathological manifestations, a framework of multiple functional disorders..
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Despite its high level of prevalence, the Ehlers–Danlos syndrome is still largely unnoticed by physicians.
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Most of them connect the syndrome with their own field of specialization, i.e.
rheumatology (fibromyalgia, spondyloarthritis, arthrosis), neurology (multiple sclerosis), respiratory diseases (asthma) and, in particular, psychiatry (depression, bipolar state, though there is a link between EDS and autism).
Cases of autism with clinical signs of EDS have been observed in the same family..
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The absence of diagnosis is at the root of a chaotic medical process with a heavy impact on families and patients, with a medical drifting from specialist to specialist, a constant challenge of the sincerity of patients from physicians unable to receive valuable clues from medical imaging or biological test despite severe symptoms.
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The Münchausen syndrome or even hysteria have been used in several conclusions from physicians.
The patient is led to doubt of his own mental health, and so is its family.
The proposed treatments, in particular anti-depressives, only worsen the symptoms and surgical interventions (up to 46 in one of our cases) cause irreversible damages leading to rarely seen intense disabling situations.
Among social consequences we find dropping out of school and exclusion from work and social life.
In a few words, a patient with EDS is driven from a situation of discomfort to a situation of heavy disability.
In addition, these patients are excluded from new forms of therapies .....".
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The 2nd annual #EDSRideForACause was scheduled for November 2015; however, because of low participants (and probably because Wellapalooza 2015 was the same weekend), we decided to move it to May 2016 - date to be decided.
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Awareness on EDS and raising money to support the people and organisations who do so much for our community is critical - we can't continue without your support.
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Even if you do not live locally, or you cannot ride, you can still participate by buying a bike seat in honor of yourself or someone else!.
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EDS Ride for a Cause events in the Washington, DC, are held at Zengo Cycle studios.
If you are interested in a great workout for a good cause this event is for you! Zengo Cycle's indoor cycling classes are fun and an incredible workout!.
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Sign-ups on Zengo Cycle's website: www.zengocycle.com.
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Proceeds for the 2nd Annual EDS Ride for a Cause benefit EDS Wellness - EDS Wellness' first fundraiser!.
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Date - TBD (May 2106).
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There will be free snacks, drinks & giveaways, such as Goûter tonics, manicure gift certificates, Kangan water and more!.
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Please share!.
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Resources:.
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What is Ehlers-Danlos Syndrome?.
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http://strengthflexibilityhealtheds.com/2015/10/01/what-is-ehlers-danlos-syndrome/.
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Link to quoted article:.
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http://www.omicsonline.com/open-access/ehlersdanlos-syndrome-eds-an-hereditary-frequent-and-disabling-disease-victim-of-iatrogenia-due-to-widespread-ignorance-1522-4821-1000266.php?aid=61347.
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Official 2014 FB event page: https://www.facebook.com/events/814063915305731/.
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#EDSRide4ACause #EhlersDanlosSyndrome #LiveEDSStrong #LivingWithEDS #InvisibleStrength #Stronger2Gether #InvisibleIllness #ChronicIllness #VEDS #HEDS #VEDS

Established in the recent years EDS Ride for a Cause in montgomery , maryland in united-states.


This is a well known establihment acts as one-stop destination servicing customers both local and from other of the city.

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Foods is provided with high quality and are pretty much the highlight in all the events in our lives.

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For any kind and assistance , it is better to contact them directly during their business hours.

Premises has a wide parking area and need to avail special permissions for parking.

Pets inside the premises are not allowed and require additional permission.

Cashless payments are available and extra charges for the credit cards are levid.

They are listed in many of the food delivery networks for home delivery with appropriate charges.

They accept cards , cash and other modes of payments

Tips are not actually encouraged but customers are willing to offer any benefit as needed.

There you can find the answers of the questions asked by some of our users about this property.

This business employs inviduals that are dedicated towards their respective roles and put in a lot of effort to achieve the common vision and goals.

It is a effortless task in communiting to this establishment as there are various modes available to reach this location.

The establishment has flexible working timings for the employees and has good hygene maintained at all times.

They support bulk and party orders to support customers of all needs.