Review Association Les Rêves De Margaux In cotesd-armor, brittany, france | Ngo In Cotesd Armor
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Association Les Rêves De Margaux
Cotesd-armor,
Brittany,France - 22710
06 40 73 72 36
Detailed description is Informations sur les évènements et manifestations organisées par l'association ou par d'autres organismes pour aider Margaux à réaliser son projet de vie. L'association "Les rêves de Margaux" a été créée pour aider Margaux, 23 ans, à réaliser son projet de vie, et pour faire connaître sa maladie : le syndrome de SMITH-MAGENIS.. Ce syndrome est une maladie génétique non héréditaire et complexe, dont l'origine est la perte d'un fragment d'ADN sur l'un des deux chromosomes 17, caractérisée par des anomalies diverses et des signes cliniques évocateurs.. la prévalence est estimée à 1/25000 naissances. elle es définie comme une maladie rare ou orpheline.. ce syndrome peut mettre l'environnement familial à rude épreuve, il est donc important de ne pas rester isolés.. . Malgré tout cela, Margaux qui dit joliment "je suis handicapée normale" rien n'est plus important que travailler dans le milieu ordinaire et avoir son lieu de vie personnel, une petite maison.. Mais pour cela, il faut que Margaux devienne autonome, ce qui implique la participation à de nombreuses activités thérapeutiques et la mise en place de diverses prises en charge....un coût que la famille seule ne peut supporter.. Margaux ne veut pas vivre et travailler avec des personnes handicapées, nous mettons alors tout en oeuvre pour que son projet de vie soit réalisable.. Et puis, il est hors de question de l'enfermer dans un monde qu'elle refuse. . Qui mériterait d'être enfermé.... personne.....
Established in the recent years Association Les Rêves de Margaux in cotesd-armor , brittany in france.
This is a well known establihment acts as one-stop destination servicing customers both local and from other of the city.
Over the course of its journey , this business has establihed a firm hold in the [category].
The belief that customer satisfaction is an important as it products and services , have helped this establihment garner a vast base of customers and continue to grow day by day
Foods is provided with high quality and are pretty much the highlight in all the events in our lives.
Sweets and food are the ideal combination for any foodies to try and this Association Les Rêves de Margaux is famous for the same.
This has helped them build up a loyal customer base.
They have started a long journey and ever since they have ensure the customer base remains the same and growing month on month.
As they are located in favourable location , becomes the most wanted space for the tourist.
For any kind and assistance , it is better to contact them directly during their business hours.
Premises has a wide parking area and need to avail special permissions for parking.
Pets inside the premises are not allowed and require additional permission.
Cashless payments are available and extra charges for the credit cards are levid.
They are listed in many of the food delivery networks for home delivery with appropriate charges.
They accept cards , cash and other modes of payments
Tips are not actually encouraged but customers are willing to offer any benefit as needed.
There you can find the answers of the questions asked by some of our users about this property.
This business employs inviduals that are dedicated towards their respective roles and put in a lot of effort to achieve the common vision and goals.
It is a effortless task in communiting to this establishment as there are various modes available to reach this location.
The establishment has flexible working timings for the employees and has good hygene maintained at all times.
They support bulk and party orders to support customers of all needs.