Review A Cure For Freyja Mothers Story Canberra Act Australia In canberra, australian-capital-territory, australia | Ngo In Canberra

2 Votes

2 Votes

A Cure For Freyja Mothers Story Canberra Act Australia

Canberra,

Australian-capital-territory,Australia - 0200

Noreply@comparemela.com

Detailed description is Share our journey finding a cure for Freyja and helping the family.
#acureforfreyja #afutureforfreyja It was 23rd December 2016 and my daughters: Brynn 9, Inge 7 and Freyja 5 had just finished a fun filled day of horse riding.
Exhausted from the days’ activities of feeding, grooming and riding horses, the girls looked forward to their nightly bath and bedtime routine.
With lots of giggles and chatter about the day, whilst washing Freyja's hair and listening to her excited talk about the horses, my focus shifted slightly as I found what seemed like a hard lump on Freyja’s neck which I had not felt or seen before.
.
.
After many tests and scans, in January 2017 I received devastating news that my little Freyja has cancer.
This cancer is so rare, it took a team of International Specialists supporting the Sydney Children’s Hospital to identify.
.
.
The new diagnosis is Cutaneous Clear Cell Sarcoma, formerly known as a type of melanoma.
It’s aggressive, it’s location makes it un-operable, and up until recently it was thought to be incurable.
.
.
So, how do you tell your 5 year old and her siblings she has cancer? How do you cope when you’re told she may not be around this Christmas? You fight to find a cure…..
.
The prognosis of Cutaneous Clear Cell Sarcoma is guarded, mainly because the disease is difficult to catch early and is prone to relapse and spread long after initial diagnosis.
Typically patients with Stage 4 Cutaneous Clear Cell Sarcoma have not lived beyond 12 months from diagnosis.
As Freyja was first diagnosed with cancer in January, I may only have 6 months to save her life.
.
​.
Freyja is currently undergoing a new dual drug Immunotherapy trial at Sydney Children’s Hospital, which has slowed the disease.
The last protocol is due within weeks and a decision has to be made by the beginning of July as to what happens next.
Proton Therapy has been suggested by Sarcoma Experts in both Germany and the US as her only option beyond the current trial.
.


Established in the recent years a cure for freyja mothers story canberra act australia in canberra , australian-capital-territory in australia.


This is a well known establihment acts as one-stop destination servicing customers both local and from other of the city.

Over the course of its journey , this business has establihed a firm hold in the [category].

The belief that customer satisfaction is an important as it products and services , have helped this establihment garner a vast base of customers and continue to grow day by day

Foods is provided with high quality and are pretty much the highlight in all the events in our lives.

Sweets and food are the ideal combination for any foodies to try and this a cure for freyja mothers story canberra act australia is famous for the same.

This has helped them build up a loyal customer base.

They have started a long journey and ever since they have ensure the customer base remains the same and growing month on month.

As they are located in favourable location , becomes the most wanted space for the tourist.

For any kind and assistance , it is better to contact them directly during their business hours.

Premises has a wide parking area and need to avail special permissions for parking.

Pets inside the premises are not allowed and require additional permission.

Cashless payments are available and extra charges for the credit cards are levid.

They are listed in many of the food delivery networks for home delivery with appropriate charges.

They accept cards , cash and other modes of payments

Tips are not actually encouraged but customers are willing to offer any benefit as needed.

There you can find the answers of the questions asked by some of our users about this property.

This business employs inviduals that are dedicated towards their respective roles and put in a lot of effort to achieve the common vision and goals.

It is a effortless task in communiting to this establishment as there are various modes available to reach this location.

The establishment has flexible working timings for the employees and has good hygene maintained at all times.

They support bulk and party orders to support customers of all needs.