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The UC Davis MIND Institute and the National Fragile X Foundation are working to encourage and accelerate research about the genetic condition with a new registry. The International Fragile X Premutation Registry is welcoming participants worldwide who are interested in taking part in research studies. The registry was created to facilitate and encourage fragile X premutation research around the world, including future medication and non-medication treatment and intervention studies that could positively impact quality of life, said Linda Sorensen, executive director of the National Fragile X Foundation.
The goal is to build a contact list containing a large, diverse group of people interested in contributing to research by taking part in clinical trials and other studies.
Young mum, 25, finds out the shocking cause of her mental health problems
The mum collapsed in the street while waiting for the bus to work and was sent for tests
Jennifer Dorian, from Southport, and her son Theodore
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Merseyside hospitals staff paid millions of pounds to park at work
UNISON North West regional organiser Vicky Knight said it the Government must step in to ensure trusts scrap the charges for the duration of the pandemic and beyond
A parking sign for the Royal Liverpool Hospital.
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£7.5 million to digitally schedule shifts and save NHS staff time
The investment is part of a £26 million national fund to have all NHS doctors, nurses and other clinical staff on e-rostering systems by 2021, shown to be particularly invaluable during the pandemic
E-rostering can save time and effort when redeploying staff, digitally matching staff skillset with patient care requirements and geography, while managing working hours and pay to save clinicians time and effort every week
NHS hospitals, clinics and pharmacies across 38 more trusts will be able to save staff time and money by rolling out digital shift planning, known as e-rostering systems, thanks to £7.5 million government funding.
Fit and healthy teenager collapses in the gym while lifting weights
Jack was the fittest he d ever been when the episode left him unconscious for a week
Jack Townsend, 19, from the Isle of Man (Image: Jack Townsend/Family)
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