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Novartis and NHS England reach landmark deal for Zolgensma gene therapy for SMA

Novartis and NHS England reach ‘landmark’ deal for Zolgensma gene therapy for SMA Children born with SMA type 1 typically have a life expectancy of around two years Novartis Gene Therapies and NHS England have reached a ‘landmark’ deal for Zolgensma gene therapy that gives patients with spinal muscular atrophy (SMA) access to the innovative treatment.  The list price for Zolgensma (onasemnogene abeparvovec) is £1.79m per dose, and has previously been labelled as the ‘most expensive drug in the world’. In a statement, NHS England said that the gene therapy will be available to patients at a ‘price that is fair to taxpayers’, adding that the deal has secured the treatment at a substantial discount, that has been kept confidential.

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