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Opinion: One in 10 Americans suffers with a rare disease, and half of those are children Dr. Stephanie Paulmeno FacebookTwitterEmail 1of3 Dr. Stephanie Paulmeno, DNP, MS, RN, NHA, CPH, CDP, CCM, at her home in Old Greenwich, Connecticut in April 2020.Tyler Sizemore / Hearst Connecticut MediaShow MoreShow Less 2of3 Dr. Stephanie Paulmeno, DNP, MS, RN, NHA, CPH, CDP, CCM, administers a flu shot to Old Greenwich resident David Johnson at the Eastern Greenwich Civic Center in Old Greenwich, Connecticut, Wednesday, Oct. 14, 2020.Tyler Sizemore / Hearst Connecticut MediaShow MoreShow Less 3of3 Imagine you or your child, spouse or parent having serious, often painful and debilitating symptoms that professionals are challenged to accurately diagnose or effectively treat. One feels helpless and hopeless. There are so many rare diseases affecting people this way in this country. Why one might ask, is the issue of rare diseases so important when compared to other more common illnesses

United statesOld greenwichDavid johnsonTyler sizemore hearstStephanie paulmenoEastern greenwich civic centerNational organization for rare disordersTyler sizemoreHearst connecticut mediaRare diseasesRare disease databaseNational organizationMay not know about rare diseasesஒன்றுபட்டது மாநிலங்களில்பழையது கிரீன்விச்டேவிட் ஜான்சன்