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Colchester parents 'ecstatic' after baby approved for £1.7m drug

BBC News By Charlie Jones image copyrightMegan Willis image captionMegan Willis and John Hall want their baby to have the best chance at life A baby with a fatal condition has had his parents request for treatment using the world s most expensive drug approved by the NHS after a campaign. Ten-month-old Edward, from Colchester, has severe spinal muscular atrophy (SMA), meaning he lacks a protein vital for muscle development. He will receive the new gene therapy Zolgensma, at a cost of £1.79m. Edward s mother Megan Willis, 29, said: We feel incredibly lucky, happy and relieved. His parents previously said they felt abandoned in their race against time for Edward to receive the drug, which they hoped would transform his life.

Colchester
Essex
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National-institute
Care-excellence
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Finley's Career Was Almost Derailed With The Turks

Finley's Career Was Almost Derailed With The Turks
dnronline.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from dnronline.com Daily Mail and Mail on Sunday newspapers.

Arizona
United-states
Waynesboro
Tennessee
Arlington
Texas
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Illinois
Houston
Danville
Washington
Memorial-stadium

Long Covid: Fears others will suffer when lockdown lifts

BBC News By Charlie Jones image copyrightJasmine Hayer image captionJasmine Hayer has started a blog to help raise awareness of the symptoms of long Covid A former health coach who said her life had been destroyed by long Covid is worried more people will suffer from it when restrictions are lifted. Jasmine Hayer, 31, had to give up her life in London and move back in with her parents in Biggleswade, Bedfordshire, after catching the virus in March 2020. She has never fully recovered and said she still struggles to walk and talk. The government said it had opened more than 80 long Covid assessment services.

Biggleswade
Central-bedfordshire
United-kingdom
Bedfordshire
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Brompton
Medway
London
City-of
British
Jasmine-hayer
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Ollie Bibby: Hospital apologises to mum unable to visit dying son

Ollie Bibby: Hospital apologises to mum unable to visit dying son
bbc.co.uk - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from bbc.co.uk Daily Mail and Mail on Sunday newspapers.

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Essex
United-kingdom
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Tim-jaggard
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Sir-keir-starmer
Prime-minister
Mrs-bibby

مستشفى بريطاني يعتذر لأم بسبب منعها من زيارة ابنها المحتضر قبل وفاته

مستشفى بريطاني يعتذر لأم بسبب منعها من زيارة ابنها المحتضر قبل وفاته
bbc.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from bbc.com Daily Mail and Mail on Sunday newspapers.

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British
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Hospital-british
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Age-xxvii
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Minister-health
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