Photographs reveal people behind rare illnesses bbc.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from bbc.com Daily Mail and Mail on Sunday newspapers.
BBC News
By Catherine Evans
image captionMaddox has a rare genetic disorder which is a perinatal form of hypophosphatasia
A mother whose three children died of the same condition, a young man facing the worst illness of all time and a teenager who lost her hair feature in an exhibition to challenge concepts of beauty.
Beauty of Rare was created by north Wales-based charity Same but Different.
Each photograph tells a story about each person s identity and their experience of a rare illness.
A virtual exhibition has been launched on the charity s website.
Photographer and charity founder Ceridwen Hughes said: Each scene was created around the individual and their condition with small details that, on first glance may, not make sense but on reading the narrative will become clearer.
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People with certain medical conditions can not have the coronavirus vaccine and there’s emerging evidence that the vaccines may not work as well for people with suppressed immune systems. It’s also worth remembering that no vaccine is 100% effective, and it is possible to become infected even after vaccination.
This is particularly concerning for the nation’s disabled community, who are among those hardest hit by the pandemic. Data from the Office for National Statistics (ONS) shows six in 10 of all those who’ve died from Covid were disabled people.
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Natasha Coates
Natasha Coates
Brogan Taylor, 28, from Northumberland, is also dreading the lifting of restrictions and says it’ll mean she’ll be forced to limit time outside once more. Taylor only returned to the supermarket in May for the first time since March 2020 and has been enjoying a slice or “normality”. But, she says, she won’t feel safe to do that once face masks are no longer
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