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CX Daily: Chinese With Rare Diseases Face Painful Predicament Affordable Yet Unavailable Drugs Medicine / Xu Kai and her family smashed 1,000 boxes of tablets used to treat her 8-year-old daughter’s rare genetic disorder. The latest shipment of the medicine, which Xu had been buying through purchasing agents since her daughter was born, turned out to be fake. Phony pharmaceuticals are just one of the problems that patients and their relatives face trying to get their hands on medicine for treating rare diseases in China. Many of these drugs are cheap and readily available outside of China, but lagging regulations and the cold logic of the market economy have made them difficult to come by inside the country. The situation has forced people like Xu to turn to an unreliable network of sometimes untrustworthy purchasing agents to buy drugs overseas that they or their loved ones need to lead normal lives.

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