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New Colorado board opts against price controls for high-cost cystic fibrosis drug

Lack of Disease Recognition & Understanding

Lack of Disease Recognition & Understanding

Renowned Nutrition Expert Puts Rare Disease Day on the Radar

Renowned Nutrition Expert Puts Rare Disease Day on the Radar Dr. Virginia A. Stallings Discusses Individualized Nutrition Therapy for People with Cystic Fibrosis News provided by Share this article Virginia A. Stallings, M.D., highlights the nutritional challenges and therapies for people living with one of those rare diseases, cystic fibrosis (CF). An in-depth discussion/presentation by Dr. Stallings, entitled, Individualized Nutrition Therapy For People With Cystic Fibrosis: Gaining Or Losing Weight, will be featured on the Cystic Fibrosis Research Inc. (CFRI) podcast, Rare Disease Day, held annually on the final day of February, recognizes the 6,000+ rare diseases worldwide, 72 percent of which are genetic. More than 300 million people live with a rare disease across the globe. There are 30,000 people in the U.S. and 70,000 worldwide diagnosed with cystic fibrosis, managing its many debilitating effects on the respiratory and digestive systems.

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