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Transcripts For BBCNEWS Bittersweet Medicine 20240706

Found in the river wyre close to where she disappeared. The mother of two was last seen walking her dog late last month. Now on bbc news, bittersweet medicine. This is a story of hope. How a new treatment is stopping a devastating genetic disease in its tracks. We have had almost nothing to offer families with this condition for decades. Bringing a new medicine to the world that can potentially cure these devastating diseases is incredibly satisfying and rewarding. How britains most expensive medicine is giving children their lives back. Its amazing. I mean, shes such a little character and for her to receive this treatment is just an absolute blessing. Theyre literally walking, running miracles, you know . They shouldnt be here. Im fergus walsh, the bbc s medical editor. Ive been following the first patient treated by the nhs with this life saving drug, and meeting families affected by one of the rarest and cruellest of genetic conditions. Nala, charlie, nala, charlie shaw. This is th

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Transcripts For BBCNEWS Breakfast 20240706

stars of the silver screen are getting ready for the baftas later tonight. we ll look at which films might take home the awards. good morning. we are looking at a brighter day, with a few more cloudbreak surround, so some sunny spells developing for many. probably quite a nice sunrise for some of you. in scotland we have to get cloud with rain on the way and here it is going to turn progressively windier, with severe gales on the way, tonight across the north. more on but a bit later on. it s sunday, the 19th of february. our main story: the british medical association says the government is standing on the precipice of a historic mistake by failing to stop strike action in the nhs. 16,000 junior doctors in england are being balloted over industrial action. that vote closes tomorrow, when a large number of ambulance workers in england and wales will also walk out. vincent mcaviney has the latest. escalating strikes across the nhs. ambulance workers in england, wales and nor

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Transcripts For BBCNEWS Bittersweet Medicine 20240706

submitted a bid to buy manchester united bbc sport understands that a rival bid was also tabled by ineos. now it s time for bittersweet medicine. this is a story of hope. how a new treatment is stopping a devastating genetic disease in its tracks. we have had almost nothing to offer families with this condition for decades. bringing a new medicine to the world that can potentially cure these devastating diseases is incredibly satisfying and rewarding. how britain s most expensive medicine is giving children their lives back. it s amazing. i mean, she s such a little character and for her to receive this treatment is just an absolute blessing. they re literally walking, running miracles, you know? they shouldn t be here. i m fergus walsh, the bbc s medical editor. i ve been following the first patient treated by the nhs with this life saving drug, and meeting families affected by one of the rarest and cruellest of genetic conditions. # nala, charlie, nala, charlie shaw. th

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Transcripts For BBCNEWS Bittersweet Medicine 20240706

of genetic conditions. # nala, charlie, nala, charlie shaw. this is the shaw family, from northumberland. mum and dad, ally and jake, and their two daughters, nala and teddi. i ve always said nala saved teddi s life. and that s how i ve wanted to think about it. whee! the family are living under the shadow of a devastating disease a rare life limiting genetic disorder called mld which is already taking a toll on nala. days out like this are one way the family are building happy memories with their girls. and there s one sure way to please any toddler. more cake? yes, more cake! nala was once just as lively and active as her younger sister. she was such a cheeky little character. she was always, like, kind of, singing, dancing, spinning around everywhere, always laughing. she was just a cheeky little girl. very theatrical, wasn t she? everything was all. every morning, i would do a little instagram video. yay! and everybody would message and just say how she brightens thei

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Transcripts For BBCNEWS Bittersweet Medicine 20240706

found in the river wyre close to where she disappeared. the mother of two was last seen walking her dog late last month. now on bbc news, bittersweet medicine. this is a story of hope. how a new treatment is stopping a devastating genetic disease in its tracks. we have had almost nothing to offer families with this condition for decades. bringing a new medicine to the world that can potentially cure these devastating diseases is incredibly satisfying and rewarding. how britain s most expensive medicine is giving children their lives back. it s amazing. i mean, she s such a little character and for her to receive this treatment is just an absolute blessing. they re literally walking, running miracles, you know? they shouldn t be here. i m fergus walsh, the bbc s medical editor. i ve been following the first patient treated by the nhs with this life saving drug, and meeting families affected by one of the rarest and cruellest of genetic conditions. # nala, charlie, nala, char

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