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Sculpture to mark 10 years | Cork Independent

A specially commissioned sculpture by Cork artist Rachel Doolin has been unveiled to celebrate BioMarin’s ten years in Ireland.

Rachel doolinConor delaneyJim lennertzAvril dalyMichael mcgrathNational sculpture factoryRetina internationalSite leaderPublic expenditureReform michael mcgrathMichaelo sullivanGiving treeRare diseases irelandSenior vice president

No sign of new rare disease plan despite four year wait

Though listed as a priority for government, the plan has yet to emerge

Vicky mcgrathNational rare diseaseOireachtas healthNational rare disease planHealth research boardIrish pharmaceutical healthcare associationRare diseases ireland

Citizens jury needed to deliver verdict on use of genomics in State

Group of 25 people sought to consider how should genetics be applied and regulated

Public patient involvement officeHealth research charities irelandIrish platformPatient organisationsRare diseases irelandWednesday marchDerick mitchellKevino sullivanOrla hardimanRish platform for patients organisationsScience industryRoyal college of surgeons in ireland

Have your say on the future of genome research

Irish people are being Invited to become members of a Citizens’ Jury that will deliver a verdict on the future of Genomics in Ireland - and you don’t .

Orla hardimanPublic patient involvement officeUniversity public patient involvementOversight panelHealth research charities irelandHealth sciencesCitizen juryPatient involvement officeRare diseases irelandDeliberative dialoguePublic patient involvementWednesday marchProfessor orla hardiman

Irish public invited to weigh in on the use of genomic research

Genomics research will be the subject of a citizens’ jury, which will deliver a verdict to help shape future policy in the sector.

Orla hardimanPublic patient involvement officeTrinity college dublinHealth research charities irelandHealth sciencesIrish platformPatient organisationsPatient involvement officeRare diseases irelandJohn greally

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