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Orsini Specialty Pharmacy Selected to be the Exclusive Specialty Pharmacy Partner for VEOPOZ™ (pozelimab-bbfg), the First and Only Treatment for CHAPLE Disease

/PRNewswire/ Orsini Specialty Pharmacy ("Orsini"), a leading independent specialty pharmacy focused on rare diseases and gene therapies, announced today.

Brandon tomRare disease pharmacy centerNational association of boards pharmacyAccreditation commission for health careRegeneron pharmaceuticals incSpecialty pharmacyRegeneron pharmaceuticalsProtein losing enteropathyChief executive officerLeft behindAccreditation commissionHealth careJoint commissionNational associationDisease pharmacy centerExcellence designation

What is PLE? New procedure gives hope for others with rare condition

Protein-Losing Enteropathy (PLE) is difficult to diagnose and the treatments are limited, but the team at Nemours has come up with a unique new approach that has a very grateful surfer singing their praises.

United statesDebbie rabinowitzKatelyn sewellStephanie stahlNational interscholastic championshipsNemours childrenNational interscholasticProtein losing enteropathyEmmy award winning

I have my life back : Penn Medicine solves woman s medical mystery

The Penn team will be presenting her case at a medical conference Monday. They hope the surgery will be used by other patients with her condition.

United statesRonni elenaStephanie stahlMax itkinTodd hechtPenn medicineProtein losing enteropathyEmmy award winningPenn med

Regeneron (REGN) Announces Pozelimab BLA for Treatment of Children and Adults with Ultra-rare CHAPLE Disease Accepted for FDA Priority Review

Regeneron (REGN) Announces Pozelimab BLA for Treatment of Children and Adults with Ultra-rare CHAPLE Disease Accepted for FDA Priority Review
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Regeneron pharmaceuticals incDrug administrationPriority reviewBiologics license applicationProtein losing enteropathyDrug designationFast track

Hoping for surgery in the US: Four-year-old Luis from Beuel fights for his life

The fundraising campaign "Please, help Luis!" is currently running on almost all social media channels. Luis is four years old, lives with his family in Geislar and suffers from PLE. He urgently needs an operation in the USA as life-sustaining treatment.

Nordrhein westfalenUnited statesAndrea dautzChristoph dautzDieter kochFour year old luisProtein losing enteropathyNemours children

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