Created: April 29, 2021 04:38 PM
PERINTON, N.Y. (WHEC) Walk up the stairs of the Shanley home in Perinton, down a narrow hallway and you find yourself in the bedroom of 22-year-old Madeline Shanley.
She was once an honors student at Nazareth College.
But a disease that puzzled her parents and doctors for years has left her bedridden. Her parents say there is no medication that eases her pain.
Jennifer Shanley: They tell people in her situation to try to learn to not recognize the pain. Not to think about it.
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Brean: Just ignore it.
Chris Barker Shanley: Right. A lot of people don t die from these illnesses. They actually take their own lives.