hours without sleep. i ve now got to do the rest of the night, get declan up in the morning. then i m going to have to look after declan all day tomorrow. you have to do it yourself, to the point they ve had me where i ve ended up saying, ok, you win, you re going to have to put him into care, because i physically cannot do this anymore. and then they ve told me that there actually isn t any residential care suitable. when they do find care staff, they often don t stay long. putting trust in new people is so difficult when a lot of them clearly don t know want they re doing. nhs spending on this sort of home based care has risen significantly in the last four years, but experts say increasing demand, more complex medical needs and rising costs mean more patients say they aren t getting enough support. dan harber runs an nhs funded helpline that advises people on continuing health care. we have been receiving more and more
it s been go, go, go, go, go. i m absolutely shattered. at 3:00, we had to do more chest physio. 5:00, we had to do more chest physio. 8:00, started put his neb on and then had to, um. sorry, i m knackered. declan s care is paid for by the nhs under a scheme known as continuing health care. it funds him for support at nearly £19 an hour, but his mum says it can cost up to £80 an hour for the skilled nursing care he increasingly needs. and with a fixed budget, it means they get fewer hours of help. at times, alex has gone 60 hours without sleep. i ve now got to do the rest of the night, get declan up in the morning. then i m going to have to look after declan all day tomorrow. you have to do it yourself, to the point they ve had me where i ve ended up saying, ok, you win, you re going to have to put
for us since last october. i ve been looking after dec all day. because he s still getting over pneumonia, it s been go, go, go, go, go. i m absolutely shattered. declan gets nhs continuing health care funding. it pays nearly £19 an hour for his support, but his mum says it can cost up to £80 an hour for the nursing care he increasingly needs. it means they can afford less help and at times alex has gone 60 hours without sleep. i ve now got to do the rest of the night, get declan up in the morning. then i m going to have to look after declan all day tomorrow. you have to do it yourself to the point where i ve ended up saying, ok, you win, you re going to have to put him into care, because i physically cannot do this any more. and then they ve told me that there actually isn t any residential care suitable. nhs spending on home based care has risen significantly