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NICE recommends Amryt's Filsuvez treatment for epidermolysis bullosa

NICE recommends Amryt's Filsuvez treatment for epidermolysis bullosa
pmlive.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from pmlive.com Daily Mail and Mail on Sunday newspapers.

United kingdomHelen knightJoe wileyAmryt pharmaAmryt filsuvezNational institute for healthEuropean commissionGenetic alliance united kingdomNational instituteCare excellenceAmryt pharmaceutical filsuvezGenetic alliance united

Newcastle to lead £14m rare disease network that builds on city's 'outstanding reputation' for lifesaving research

Newcastle to lead £14m rare disease network that builds on city's 'outstanding reputation' for lifesaving research
chroniclelive.co.uk - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from chroniclelive.co.uk Daily Mail and Mail on Sunday newspapers.

United kingdomRare disease researchNewcastle universityNewcastle centre for rare diseaseNewcastle health innovation partnersUnited kingdom rare disease research platformAmbulance serviceGenetic alliance united kingdomNewcastle hospitalsNorth east ambulanceNewcastle centreRare diseaseResearch excellenceDavid burn

Groundbreaking new £100m LifeArc programme aims to improve the lives of people living with a rare disease

Groundbreaking new £100m LifeArc programme aims to improve the lives of people living with a rare disease
finanznachrichten.de - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from finanznachrichten.de Daily Mail and Mail on Sunday newspapers.

United kingdomCity ofAndrew stewartCatriona crombieGail marzettiKaren skinnerMelanie leeRare disease research platformCommunications at lifearcGlobal healthUnited kingdom department of healthGenetic alliance united kingdomBiomedical research centresRare disease translational challengeTranslational rare disease centresNeurodegenerative translational challenge

'I've been stuck in my bedroom for two years'

A young woman with a rare disease says she is not being supported to have any quality of life.

United kingdomNikki foxBrian kerrDaisy simpsonCharlie jonesBrentwood councilGenetic alliance united kingdomSouth essex integrated care board

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United kingdomCity ofFrance generalDebashis bhattacharyaRick wilsonSamantha lynneKamlesh shethPhillip morrisAlison wallJenny agutterWladyslaw wygnanskiAlastair kentSimon stevensPatrick ladburyLondon day centreMeningitis research foundation