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Newark teenager with body of a 6-year-old makes plea for lifleline
He basically has no life when he’s inside the house
12:18, 12 MAY 2021
Updated
Tommy McGonigle, 16, who lives in Newark, has an extremely rare condition.
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The family of a teenager whose body resembles that of a six-year-old are struggling to pay for a buggy to help enhance his quality of life.
A girl whose parents know her as Little Miss Sunshine is looking for donations to fund a life-enhancing buggy. Neave, aged 13, has chromosomal deletion syndrome and dyspraxia, a neurological disorder which affects her movement and coordination, cannot enjoy days out to the beach or the woods as her current wheelchair is unable to move over uneven ground. The specialised equipment would allow the youngster and her family to do more together as well as open up a world of opportunities for Neave to explore places she has, so far, been unable to visit. The family, from Illogan, say they’re confined to their home and limited on where they can go with their little girl’s wheelchair due to its inability to navigate over surfaces such as sand or woodland paths.
And it s all thanks to a generous grant for specialised equipment from a children s charity.
It means that little Abby Paton, from Carrickfergus, can now enjoy being safely pushed in an adapted swing in her own back garden - which mum Kelly said was a life-saver for the little girl and her family during lockdown. Abby, loves the sensation of swinging, but we found it was unsafe to push her in an ordinary swing as she can t grip on, said Kelly. Abby would also lean forwards a lot, so we were worried she could fall out. We tried holding onto Abby whilst pushing her but she wasn t getting the full experience of being in a swing.