Biobanks and biomedical research data repositories collect their samples and associated data from volunteer participants. Their aims are to facilitate biomedical research and improve health, and they are framed in terms of contributing to the public good. Biobank resources may be accessible to researchers with commercial motivations, for example, researchers in pharmaceutical companies who may utilise the data to develop new clinical therapeutics and pharmaceutical drugs. Studies exploring citizen perceptions of public/private interactions associated with large health data repositories/biobanks indicate that there are sensitivities around public/private and/or non-profit/profit relationships and international sample and data sharing. Less work has explored how biobanks communicate their public/private partnerships to the public or to their potential research participants. We explored how a biobank’s aims, benefits and risks, and private/public relationships have been framed in pu
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Researchers discover the role of a gene involved in cardiac rhythm
Researchers have used the zebrafish (
Danio rerio) to identify the role of a gene involved in cardiac rhythm, which could help explain the fundamentals of what it takes to make a human heartbeat.
The University of Melbourne study also found that mutation of the gene, Tmem161b, causes potentially fatal cardiac arrhythmia. 2.5 per cent of Australians are living with cardiac arrhythmia (ABS). In 2019, it took 3090 years of potential life. Mutations in this gene may be contributing to the cause of this.
Published in
Proceedings of National Academy of Sciences of the United States of America (PNAS), the research could lead to better understanding and treatment of the condition in humans.