For gentle overnight relief try dulcelax. Gentle, overnight relief. Designed for dependable relief. When salonpas began in japan in 1934, a single patch created a category of pain relief. 80 years later, salonpas has evolved into a complete family of pain relievers, perfect for back, muscle or joint pain. Targeted relief. Number one in just 60 good evening. Thanks for joining us. What happens when even walking outside causes extreme pain . Well for the operative girl youre about to meet Simple Pleasures like splashing in a pool or running in a playground led to a baffling set of symptoms. Until one doctor discovered the unlikely source of her suffering. Heres abcs Abbie Boudreau. It burns reporter its every parents worst nightmare. A happy child normally looks like this. Reduced to this. It burns, mommy some days she would cry for hours and hours on end. And it just felt like lava was being poured on me. Like it burned from the inside out. Reporter a medical mystery. Hopeless. Theres nothing you can do. Reporter savannah falkerson was 4 years old living in california when her mom noticed something strange. Wed be outside and shed start screaming. Wed be at the pool and shes skrem shes burning, she wants to go id be like we just got here what is the problem . I hurt i burn i burn i want to go in i cant take it i would really itch a lot. And it would turn my hands and feet really red. Like if i scratched too much it would like blister kind of. Then scar. Reporter andrea would put savannahs hands in bags of ice, or a Cuttino Mobley bathtub. Nothing would help. Ive taken her to the doctor when shes been crying whats wrong with her . They just tell me she as eczema. Im going, you crew like that from eczema. Reporter for five years they had no answers. Until they met dr. Mineli lu at childrens hospital, los angeles. In savannahs case we can see that she has developed red welts on her hand as well as her fingers. Reporter and this along with her young age, made dr. Lu suspect savannah had arythropoietic porphyria. It was featured on house. Look at her arm. Reporter but could this be what was affecting savannah . The challenge is body how rare the condition is as well as the subtlety sometimes. There may be some red patches, maybe areas that look sunburned, that can lead to a long lag in diagnosis. Reporter after years of no answers, a simple blood test finally gave them one. What did the doctors finally tell you . That she had say it. Erythropoirtic porypheria. Reporter it would mean a life sentence confined to a world of shadows. How do you explain this to your friends . That im allergic to the sun, i cant be out, i can never be at the beach, can never go to a sunlit pool. Literally i have to be in the dark. Darks my home. Reporter savannah now 11 years old, has to wait until evening to swim in her pool. A friends definition of a normal day and my definition of a normal day are way different. Hers is bright sunny, and beautiful. Mines dark, cloudy, and rainy. Reporter when she does venture out into daylight its an effort putting on this uv protective clothing. People have made fun of you because of this . Yeah because of my scarred hands. They called me old lady hands. Or umbrella head. Because of my big hat that goals around. So i dont get burned. They dont understand . They dont. Reporter savannah doesnt let that get her down. Look you have such a good attitude about it. How is that possible . I just try to think positive. Because i know kids somewhere else have way worse than me. Reporter the family has made adjustments for the little girl with boundless energy. You have a trampoline in your living room. Who has that . Not many people. Not many people. Reporter savannahs not the only kid living life in the shade. When the sun goes down a fun summer day is just beginning for these one of a kind campers in new york city. Night baseball is fantastic, were enjoying this having fun, thats what counts. Reporter these kids suffer from another rare genetic skin disorder, xp. Any exposure to sun line can cause thirddegree burns and lead to cancer. I dont feel left out when im in camp. When im outside of camp i feel left out. Reporter when their daughter katie was diagnosed with xp dan and karen founded camp sundown in upstate new york where day is night and night is day. We do normal kid stuff. We turn the night around and do it a different time of day. Reporter these rare medical conditions arent new. Some scientific historians speculate vlad of tran silsylvania had epp. Hes believed to be the historic basis of dracula, giving rise to legends that continue this day in popular tv shows like vampire diaries. Run, run reporter just today, new hope for savannah and others like her. A study about a drug treatment published in the new england journal of medicine. With this drug youre going to increase the melanin in your skin, youre going to tan in a couple of days. The tan and melanin will act as a safety filter for the harmful rays of the sun. Reporter although the studys findings are promising, the drug is only available in europe. Awaiting fda approval here in the states. At the moment this is the only drug thats really effective as shown by the clinical studies. What is your big hope . That theres a cure out there. And like kids dont have to live with this. Reporter experts say less severe forms of epp can occur. Some symptoms are redness over areas exposed to the sun, such as the nose the cheeks, or hands. There are of course many skin conditions that can present with exactly the same findings. Thats where seeking attention with either a dermatologist who specializes in children or a pore fear yeah specialist is very, very important. I wish i didnt have it. I wish no one had it. Reporter but for savannah and her family the hope that maybe one day shell be able to feel the sun on her skin without pain is enough to keep her smiling. It doesnt define me. Like, when i get older, like its not going to change what i want to do. Like, im still going to want to have like everything that i possibly can as like a normal life. What would that normal life look like to you . A house on the beach. On the beach . A sunny beach . Yeah. Really . Yeah. Its not going to tear me down. Its going to just build me up. Reporter for nightline, im Abbie Boudreau in santa clarita, california. Up next what do these south american cowboys know that the rest of us dont . The secrets to some of the worlds most delectable barbecue. Ou struggle with type 2 diabetes youre certainly not alone. Fortunately, many have found a different kind of medicine that lowers blood sugar. Imagine what it would be like to love your numbers. Discover oncedaily invokana®. Its the 1 prescribed in the newest class of medicines that work with the kidneys to lower a1c. Invokana® is used along with diet and exercise to significantly lower blood sugar in adults with type 2 diabetes. Its a oncedaily pill that works around the clock. Heres how the kidneys allow sugar to be absorbed back into the body. Invokana® reduces the amount of sugar allowed back in and sends some sugar out through the process of urination. And while its not for weight loss, it may help you lose weight. Invokana® can cause important side effects including dehydration, which may cause you to feel dizzy, faint, lightheaded, or weak especially when you stand up. Other side effects may include kidney problems, genital yeast infections urinary Tract Infections changes in urination high potassium in the blood, or increases in cholesterol. Do not take invokana® if you have severe kidney problems or are on dialysis. Stop taking and call your doctor right away if you experience symptoms such as rash, swelling, or difficulty breathing or swallowing. Tell your doctor about any medical conditions ons you are taking and if you have kidney or liver problems. Using invokana® with a sulfonylurea or insulin may increase risk of low blood sugar. Its time. Lower your blood sugar with invokana®. Imagine loving your numbers. Theres only one invokana®. Ask your doctor about it by name. I like my seafood like i like my vacations tropical. And at red lobsters island escape, i can try new dishes like the island seafood feast with crab, lobster jumbo sweet and spicy and coconut shrimp. So hurry in, itll be gone before you know it. Lots of husband firing up the grill or watching somebody else fire up the grill this hol dad weekend. The woman youre about to meet says if its just burgers and dogs on your menu its time to expand those taste buds. Tonight, one american chefs taking us on a succulent south american adventure that involves less easy to love parts, from nose to tail. She says theyre not only delicious, they can be healthy too. Look at how beautiful it is, so many cows. Reporter three hours outside of monte vedeo, uruguay, were on the hunt for the worlds best barbecue. Uruguay is very flat. Thats part of why its so easy to raise beef here. Reporter the american butcher, rancher, and restaurateur is heading into goucho country, the land of the famous south american cowboys. Cooking this for two and a half hours, three hours over this low, slow eat. Uruguay is where i come for inspiration. Everything is rough and unfinished. Im going to hang out at the grill and eat the whole thing. Reporter anja was once a vegetarian. Then i had a radical experience. I went from low fat, no fat, 90s lifestyle to moving to southern italy and eating a ton of pork fat and lost weight and got healthier. Reporter now shes all about the meat. Not just any meat. Raw meat. Fatty meat. Shes making it her business to get the rest of us to eat like she does. That was delicious. Right here. Uruguay is the land of meat. This is where it all starts. So this is our santa monica butcher shop. Reporter back home in california shes building a meat empire with a string of butcher shops and restaurants. Bell campo meats. Everything from guinea fowl and quail and squaub to classic beef and pork. Reporter and shes assembled an army of true believers who work there. I grew up on fish sticks and hot dogs folded into mac and cheese. Like a lot of people. I didnt know what food could taste like. I had an eyeball in crete. And that was pretty adventuresome. It was a big goat roast. Reporter they dont insist yolls but they say meat is more about chicken breasts and lean steaks. This is all fat from the big from the fatback. And its insanely delicious. The craziest yummy taste that you didnt know existed. Been eating fat since the beginning of time. Thats a little lamb. Very little. I chose it because its tender. Reporter anja scours the world in search of new recipes. Id love to go to northern scotland and do taste mutton with fur on traditionalstyle butchery. Reporter if this sounds unappetizing, according to anja its because weve lost touch with the way we should be cooking. The philosophy is a simple oldfashioned way of eating. Its the opposite of fast. Instead of grabbing something you can eat in your car, its cooking at home. Reporter the way people cooked for centuries. Which brings us back to those cowboys in the mountains of uruguay. These guys have what a lot of people say is the best grilling technique in the world. Its going to be very very tender. Essentially a slow smoke. Its called asado. They cook all the meat they go very slowly, and its really an allday affair. Now were going to make blood sausage. With blood and the key is to have good blood. It needs to be very liquid. If the blood is coagulated when you make sausage, as you chew it theres kurds of blood in it. It tastes bloodier. A little nutmeg. Mm, smells like christmas. Reporter they cook up every last bit. Asado is all about the slow. Here we have a number of cuts that are being cooked over a pretty low, slow fire. These are little ribs over essentially a low temperature for hours and hours. The meat gets quite tender. And this lovely fat renders out and bathes that meat in liquid fat. It stays really tender and moist. Reporter that slow cooking is what anja says enables the gauchos to get a tasty meal out of cuts the rest of us would throw away. A lot of these cuts in the american tradition, wed be cooking them with moisture braising them. Theyre tough cuts. Top round, cuts like that. With this very low heat theyre essentially doing slow cooking which makes the flavors really come out, and almost smokes this meat. Reporter since most of us dont have 12 hours to make jas latest plan is to package these dishes and sell them to you for cooking at home. I was really impressed by the fresh intestines. Reporter shell bring the recipe back to santa monica where her chef told us get this raw lamb and pure lard on toast are already big sellers. Seeing fatty intestine, how it grave that great crust, is amazing. That we can mess around with. It looks spectacular to sell it fresh because its hairy and covered in fat. I think people will freak out about that. Reporter yes, she knows its not for everyone. Yet. But she has a strategy. Deliciousness wins. And conquer the heart forthrough the stomach. Make the change delicious. So what delicious things will you be grilling up this weekend . I for one will be marinading. Head to our Nightline Facebook page and share your barbecue secrets. Up next over two decades after simba debuted on the serengeti, a new School Program is bringing the lion king musical to stages far from the bright lights of broadway. Proof of less joint pain. And clearer skin. This is my body of proof that i can fight Psoriatic Arthritis from the inside out. With humira. Humira works by targeting and helping to block a specific source of inflammation that contributes to both joint and skin symptoms. Its proven to help relieve pain stop further joint damage and clear skin in many adults. Doctors have been prescribing humira for nearly 10 years. Humira can lower your ability to fight infections, including tuberculosis serious,sometimes fatal infections and cancers, including lymphoma, have happened, as have blood, liver and nervous system problems, serious allergic reactions and new or worsening heart failure. Before treatment get tested for tb. Tell your doctor if youve been to areas where certain fungal infections are common and if youve had tb hepatitis b, are prone to infections, or have flulike symptoms or sores. Dont start humira if you have an infection. Visit humira. Com and talk to your rheumatologist. Humira. This is a body of proof if youre suffering from constipation or irregularity powders may take days to work. For gentle overnight relief, try dulcolax laxative tablets. Ducolax provides gentle overnight relief, unlike miralax that can take up to 3 days. Dulcolax, designed for dependable relief. You know the Creative Arts seem dangerously close to going the way of the dinosaurs at many schools across the country. But tonight one radical new program is helping students and teachers get back in touch with their wild side. The wilds of africa, that is. The circle of Life Reporter its been 21 years since baby simba first pounced onscreen and into our hearts. And soon after, the curtain rose on the broadway show. Now a small pride of fourth and fifth graders bringing new life and a new voice to the lion king. Everybody turn off your voices open your listening ears reporter ar. M. Bacon elementary. Simba. Reporter Alicia Mccall is putting on an adaptation of disneys juggernaut. A lot of our kids maybe couldnt play outside after school so giving them this opportunity has opened doors for them. And also i found gave them a purpose. Reporter this school one of the first using the lion king experience, a multimedia curriculum for students and teachers who may not be trained in theater. The kit holds your hand and says, heres how to stage it. Heres how to choreograph it. Reporter two months before the show Students Learning african languages. And the language of theater. Were learning about why people say what they say. How to communicate the ideas in a show and in real life as well. Reporter abcs Parent Company disney rolling out the lion king experience to 2,000 schools nationwide. To what extent is this filling the vacuum of a lot of the budget cuts that have been made in musical theater in schools . Weve cut all these day ways for kids to explore themselves and chun date to others. We have filled that five six, seven, eight reporter with a marker and paint, the kids create their own pageantry. Mimicking the elaborate puppetry of broadway. A homemade savannah crafted by glue gun, cardboard, and a whole lot of imagination. Were making our costumes. I see things like out of school sometimes i get ideas, then i start drawing them. Show me a face you would make if you were very frustrated. Reporter life lessons offstage too. I used to have fs in reading. Now ive got a c. Reporter after three months of prep for our kids, its showtime. Scared excited. Reporter a full crowd, costume prep, and a heartfelt break a leg. We are proud of every one of you and you should be proud of yourselves too. Welcome to our village. Today well share with you our favorite story. The idea that a kid will understand the world through art and that art will weave in and out of it thats their right. Its not a gift its their right to make art. I have a few kids who have already told me theyre going to win tonys one day. Now that is worth applauding. Thanks for watching abc news. Tune into Good Morning America tomorrow. As always were online at abcnews. Com. Good night, america, and have a Great Holiday weekend. Hey, nemo, pizza ready . Look at this. Ah. What the hell . Oh, hey. Hey, guys. Hey, moron where were you today . Whoa, whoa, what are you how come youre not golfin . We waited for your big nose for an hour. Then we couldnt play because a tournament was starting. Nice work, big nose. Ah, man, im sorry. Im sorry. I just had to do something at the house, you know. I just had to. I had to. Had to do that something. We kept calling. Why didnt you pick up the phone . Yeah, i know but i couldnt hear because i was fixing the dryer and, uh. That damned basin of it, its all. Out of its hoop. What, are you trying to lie or something . All right, guys, listen. Im sorry. I couldnt make it this morning because debra and i, we just, you know, we couldnt get out of bed. Oh, for cryin out loud. No, but listen. I didnt want to. I was ready to go. I was ready to go. We were in the kitchen all right, ray, look we dont need to hear the details. I bought new balls and shoes. He owes me details. Listen, junior high, shut up with the details. Its his wife. And, ray sex over golf . Its your wife. Ray lisn heres the pie, ray. You guys gonna order or are you just gonna color the place mats . No, no. Dont der anything, guys
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