Thank you, rose. What is your organization . Were a communitybased organization and weve been dedicated to finding the causes of Breast Cancer particularly those in the physical and socio socioeconomic environment and educate the community about Risk Reduction so they can a lower their risk or avoid Breast Cancer all together. So is your clientele, men, women, attorneys . Broadly based . Communities, you could stay societies. There isnt one unfortunately untouched by Breast Cancer so what were sharing comes out of research the scientists are doing and we can give it back to the community so they can do something with that organization. And woody, your wife nancy had Breast Cancer so why dont you just kind of jump in and tell us how you came to write your book. Well, i started by doing a journal when she was in the throws of the treatment and then i realized shortly after what i had to say could help other men in similar positions. And so people journal for Different Reasons and thats a very personal kind of experience, but for you, were you someone who kept a journal normally . Was it something you started because of your wifes Breast Cancer . How did you come to write the experience . Im a lifelong journalist, but private journals were done erratically through my life and sporadically. This was done very radically. It got personal and very honest and thats what the book ended up being. When did you begin to journal . Just when she was diagnosed. The day she was diagnosed. And then now the book is published . Yes. So when in your experience does the book end . It doesnt end because cancer is chronic and its always there. What the book does is have hope and this there have been 15 books in 15 years written by men about their partners Breast Cancer. 14 are outofdate and mine is current and men are the forgotten part of the equation. Mens universe is threaten and turned upside down, and most people kind of ignore the man despite the fact the man has to be there for his wife all the time, 24 7, and be passionate and compassionate at the same time. Breast cancer is one of the illnesses that is really rapidly changing in terms of the insights of the experience itself, the medical aspect in terms of research and treatment and im sort of wondering whats current from each of your perspectives of 0 Breast Cancer we can ask the same thing from his perspective. 14 are not current, so whats current for you . So literally yesterday we launched a group of people who involved with Breast Cancer survivors and we learned 23 of all cancer survivors in this country are Breast Cancer survivors, which is kind of a good newsbad news. There has been Real Progress not having a real death sentence, but it leaves a lot of people who live with greater levels of greater risk and greater levels of fear about Breast Cancer recurrence, so one of the things Breast Cancer is starting to do is look at prevention of breast Breast Cancer, not the primary disease. That is probably the most uptodate experience that i can give you. What makes your box current . I have done Extensive Research with medications, drugs, and research itself, and it constantly changes. For example, when my wife was treated, she lost her hair almost instantly during the chemo, that has been alleviated to some degree by a cocktail being changed and the one component of it that caused that is no longer there or lesser dosage. Also, there are all sorts of new drugs that didnt exist 20 years ago. Thatll extend the life not necessarily cure things. The technology have improved and the doctors are more aware they need to incorporate nonwestern medicine techniques sometimes. Woody, and rose, were off to a wonderful start. Please join us in a moment when we return on mosaic on this important topic of Breast Cancer. Cancer. Welcome back to mosaic. Were having a very important conversation. I know you deal with all classes of people, also people from all stations of life, as it impacts Breast Cancer. We certainly know like all illnesses, that it touches every race, every station in life, and im wonders if you could sort of talk a little bit about that perspective of the experience . Were increasingly bringing our focus to the underserved communities in this conversation, as the marin marin Breast Cancer, who for the most part had very significant resources they could call on and not just material, but Education Resources so they could sort of understand and engage in similar to the approach woodys taken, some research of their own, asking questions of their doctors, having english as their first language and were really starting to put our efforts and apply our learning to communicating with those communities that are not as well as resources. So for Socio Economic reasons, english is a second language, so theres a lot of work to be done there and im happy to talk about that. And what is your particular reflection as a husband with your wife with Breast Cancer we know there are women who are otherwise single who might have a companion they move through the illness, certainly lgbt folks and im wondering to what degrees, though your experience is singularly, your own, but youve written a book and all books have a universal pale appea well, it with anyones journey with appea well, it about breastl about Breast Cancer. The book talks theres chapter on a support group that ive been running for 20 years, its called marin mantoman, and its a group for men whose partners had or had Breast Cancer. Weve expand today. We have a man who had Breast Cancer himself in there. 2,500 men with Breast Cancer each year. You can talk about one of the things is people dont really articlate theulete around issues of sexuality, and arcticulate, ones ability to work, sort of the emotional roller coaster. You can talk about some of those things in the context of your experience . I could, but to answer everything you brought up, you have to read the whole book. Yeah, of course, sure. Sure. But meanwhile, the the image that women have can be destroyed during Breast Cancer because they may need a mastectemy. Mastecteomy. The hair loss is a big deal and may mean getting a wig, watching your hair growing as my wife did, in different colors. Support is important critical, in fact, coming from wherever it comes from. I recommend women and men find a group, if its possible, of support. If you believe in therapy, in terms of therapists, to find that, to use friends. Women in particular need women friends who can relate to them on the physical basis to give them that support, and men need to get out of the way sometimes. My wife, one of the things i learned was sometimes she just wanted me to squeeze her hand and shut up and that became very important. It became very important that i not play the macho man role, i would have trouble with that any way but that is not what women are looking for. Theyre not looking for the fixer in these circumstances; theyre looking for people who can understand what theyre going through and understand. Were going to come back as we continue this important conversation with woody and with rose. Please join us in just a moment on mosaic. Welcome back to mosaic. Im rabbi white. Were having a good conversation with rose and woody who has written a really wonderful book called roller coaster, how a man can survive his wife having Breast Cancer. Theres issues around prevention and genetic profiling and really coming to understand generally speaking but also individually what your own personal profile looks like when it comes to Breast Cancer so you can talk about issues of prevention and knowledge to know about yourself . Right. So about 10 of all cancers are genetic and ill talk about a standpoint briefly and ill talk about all the others where there isnt that little sort of clearcut understanding of what might be your risk factors. I lost both my mother and her sister to Ovarian Cancer when they were younger than i am and i was very fortunate to have a doctors inside africa and london and scotland and here in the bay area who took that Family History very seriously even before we knew about the brca gene, and we tomorrow a course of action to help me stay ahead of what looked like very strong famorial, and we did have it in the british communities. Armed with that knowledge over 25 years ive been able do some things that have helped to get me to this point disease free at this time and i hope to continue to being disease free and sort of general counsel i could give to people, especially with this ethnic background, know as much as you can about your mother and fathers side, as well. It used to be in terms of medical history, women were asked most exclusively about her maternal side of the family with respect to the back a gene n terms of the development of Breast Cancer. And it was my maternal paternal side, so it was the mothers side weve been able to identify the history of this gene, because its show up in what were nieces of my late grandfather, as well. It hasnt shown up on my maternal grandmothers side. Theres go to resource for information about back a brca 1, and brca 2. Ill put a plug in for them. But turning the risk of some women and men, there isnt necessarily that clearcut. It appears sort of randomly. Weve been in contact with a doctor at keiser has been having studies with eightyear old girls. And i think were going to put up a book you brought so we can show folks what its going to be. So what is the new puberty . So the new puberty is a piece of work that didnt come directly out of the sigma study, which is what weve been doing with kaiser, but some of the researchers and doctors who were associated with that team have done some research into the physical development in todays society, as well as some of the sort of psychosocial elements on what theyve done. Puberty is happening earlier and earlier. Puberty is has been shown to be associated with early puberty. Its been shown to be associated with increased lifetime Breast Cancer risks, and the belief is that whats driving this early puberty is its links to some of the other observations we hear in the news about an epidemic of obesity, lack of physical exercise, and poor diet, stress in the lives of young women. Those are all factors that can contribute to the early puberty and that becomes a risk factor over a lifetime for Breast Cancer. Theres a lot of influences around Public Policy and some other issue in the our society. Were going to talk a quake break and come back to mosaic in just a moment. Welcome back. Im rabbi white, at the tail end of the conversation with rose, and how a man can survive his partners Breast Cancer. Woody and rose theres so much thats always on the future of the Breast Cancer and always on the edge of hope, so what does the future look like from your perspectives around issues of Breast Cancer . So from a community engagement, education and outreach point of view, for us the future is those wrong women who were in high school so were very excited to start thinking deeply about how to engage that group not to drive them crazy with fear but encourage them to educate to do the things that i can to prevent Breast Cancer comfort going into the field. We need a whole new generation of advocates, communicators, of healers, of careers, of scientists. So, thats something in our future were very excited about. I think as a proliferation of Breast Cancer, 20 years ago, the word breast was a word people didnt use in public. We were going way beyond that and an organization springing up all over the country, all over the world in fact that are helpful, giving money to research, doing enormous amounts of research. My book is what i call the light at the end of the tunnel. It shows people can survive both the woman, the husband, or the partner. The relationship itself, might not have ten relationships end up closer at the end of treatment because of what they have done through, it is a it can be a positive experience despite the negativity, despite the difficulties. And from your perspective, theres just so many layers of this that are in some cases political and in some cases scientific and the practice of medicine, the personal educational aspect of it, there certainly is Public Policy. Even now, what would you say would be an underserved population or an underserved thread to the issue of Breast Cancer at large . I do think economics play a big role, so the most economically disadvantaged in our communities are the most underserved and i think we need to draw our attention to that and some of that links back to the way in general medicine accessibility to medical preventative and curative medical care in this country the way costs are allocated is a huge challenge. As well as a scientific issue. I make reference to the book to the lesbian community, the africanamerican community, the hispanic community, all of which do not go to the doctors with the same taken from weakness more healthy White Community does, therefore survival rate is lower. Rose and woody thank you so much. Certain, there are lots and lots of layers we did not get to. We hope this is a coma to the conversation on every level that you do. Thank you so much for being with us here on mosaic. I love my sister. My heart doesnt see race. Love is love. Welcome to bay sunday. Have we got a show for you. Hi other im frank. Go to facebook. Com bay sunday to the page and well get in touch. As i mentioned, our opening guest is a big one. His name will forever be proceeded by six words, the second man on the moon along with Neil Armstrong piloted apollo 11. The great buzz aldrin, my vision for space exploration, wereex
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