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at nearly £2 million a dose, zolgensma has been called the most expensive drug in the world. but now, through a discount deal, this revolutionary gene therapy is available on the nhs and a five—month—old baby, has become one of the first children to be given it at a hospital in london. arthur morgan received the ground breaking treatment for the genetic condition, spinal muscular atrophy, a devastating disorder which shortens life. our medical editor fergus walsh reports. this is the world's most expensive medicine. the list price of zolgensma is almost £1.8 million. but the nhs has negotiated a confidential discount which will enable dozens of affected infants to be treated each year. five—month—old arthur is one of the first to benefit. he has spinal muscular atrophy, sma, a genetic condition which causes progressive muscle weakness. without treatment, those affected

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