The irony of all this penny pinching is that having diseases like this in the community actually cost more than treatment ever does. Even when people get the tests and find out what the the options are it is still not easy to access help even for the most savvy of us.
Sometimes even getting a diagnosis is blocked or made difficult because of the possibility of expensive treatment. Especially if there is a social stigma.
In the weekend I heard overheard a conversation between two social workers. This took place in a public area and while they didn’t identify anyone by name it was a bit scary.