by Dr Jayashree on July 6, 2021 at 9:46 AM
The parents of a five-month-old baby girl suffering from an extremely rare genetic condition turning her into stone are warning other families to look for potential signs.
Baby Lexi Robins born on January 31 to Alex and Dave couple from Hemel Hempstead, Hertfordshire, UK, is diagnosed with a life-limiting incurable disease called
fibrodysplasia Ossificans Progressiva (FOP) that affects just one in two million people.
This condition replaces muscles and connective tissues with bone leading to bone formation outside the skeleton, prompting restricted movement. So, this disease is compared to the body turning to stone.